I am totally a probie here; just signed up minutes ago. DV, Your journey is inspirational. You have multitudes of friends who have become your extended family through the years, not the least of which is mm (magic mike? - couldn't resist, sorry, Mrs. Mike).
I was first diagnosed in Dec 2012; and had a transitional resection Jan 21. Aside: would it kill them to just call it tumor removal? Really? This is worse than ordering a small coffee at Starbucks.
Dr. Ko performed a cyscoptosy, and let me see the tumor. it was dthe sea fan kind (kind of mesmerizing, really), and I asked him where Nemo was. No smile, nothing. Nothing at all, though the nurse snorted a bit.
So, I am once again scheduled for a small Starbucks coffee, in and out, just a few hours. I kind of knew the cancer had returned, as I had been having the backache and lower pelvic pain just weeks after Jan. The tumors must have started up right after the first surgery. Bastids.
I have only three complaints. One, my urologist, Dr. Ko at Loma Linda University, doesn't seem interested in altnatives that might compromise his (!) results. He is a clip board type of guy, and does not appear to have a sense of humor. I realize this may be an unrealistic expectation in a cancer situation, but at least a human doc could fake a little for my kids' sake. I thought my Nemo joke was quite hilarious.
Finally, would it really kill the insurance companies to let us stay overnight after cancer surgery? They have so much of our money, and it IS cancer, which should count for something, if only a night with cath assistance and a couple of ,, to order. The most I should ask hubs to do at home is to leave me in bed with some saltines, water, drugs, Jello, and a walker. The girls should not have to deal with cancer mom except to kiss to sleep. Actually, my husband might redeem himself by building me a motorized rope tow to the toilet. He CAN cook, but only grilled creatures and corn on the cob. I have no words.
See? See? I can be funny. I plan to visit USC Norris center in LA for a 2nd opinion after we get the biopsies from this round. My neurologist and neuropsychologist are there, and they could cross-access all of my info. No telling what good may come of that.
Anyway, my email is <<removed>>. Feel absolutely free to contact me. I will try to find some bcancer jokes in the meantime, and may any of the gods you relate to help you and yours through this.