1. Forum
  3. All Categories
  5. Non Invasive Bladder Cancer
  7. Just saying hi

Just saying hi

11 years 5 months ago #43540 by sara.anne
Replied by sara.anne on topic Just saying hi
I don't remember whether you have had BCG or not. After a number of BCG treatments, my cysto showed "red" spots that my uro was pretty sure were irritation from the BCG. We agreed that he would do a "little bit of a biopsy" in the office...if he couldn't do it we would then go to a full TURB. He was able to get enough tissue with a sort of scraping to tell that, indeed, it was irritation and we avoided the general anesthesia, day in the hospital, etc... It was not uncomfortable. Just like the dentist says, "a little pinch."

I would emphasize that we were just confirming what he was already 99% sure of. A lot of uro's might not have done anything. If there were any question at all, this would not be the right procedure.

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

11 years 5 months ago #43539 by alanlee
Replied by alanlee on topic Just saying hi
He siad it was nothing to be concerned about but i will double check with him. Are you saying that i could have lots of pain? The doctor has been great so far, and has not taken any chances whatsoever. If it hurts that bad, let me know and I will give the doc a call and tell him I want this to be done in the hospital.

So far everything they have scraped off since the very first and second trips have come back as not even being precancerous. I value your opinion greatly so please let me know! :dry: :( :huh:
2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

Please Log in or Create an account to join the conversation.

11 years 5 months ago #43538 by mmc
Replied by mmc on topic Just saying hi
So he doesn't think that it might be CIS? If the spots are from previous biopsies that is one thing but if they are new then they should certainly be checked out.

Any time I had anything removed it was in the hospital and I was out. Once they tried getting a sample while I was in his office on the table and I think the dent in his ceiling is still labelled the Mike's nose imprint from where I levitated off the table at the speed of light.

Hope it's nothing but as you say, it is good to be vigilant.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

11 years 5 months ago #43536 by alanlee
Just saying hi was created by alanlee
Had my Cysto today. It showed 3 reddish spots that the doc said he can scope out in the office. I don't know how usual this is, but at least he does not seem concerned and feels it is just precautionary to do. I go back in 90 days for the procedure which is sort of a cysto+ I guess.

I suppose I am staying on top of all of this and with the docs help it is not getting worse to any degree whatsoever.

alanleee
2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

Please Log in or Create an account to join the conversation.

Moderators: Cynthia, eddiek, sara.anne
  1. Forum
  3. All Categories
  5. Non Invasive Bladder Cancer
  7. Just saying hi

Login