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BCG

8 years 3 weeks ago #36019 by dieseldoc
I did that's why I so ticked.

T1,NO,MO battling bladder cancer since 2005

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8 years 3 weeks ago #36018 by mmc
Yeah, that would tick me off too!!! Check Dr Lamm's protocol. He's pretty much the world authority.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 3 weeks ago #36017 by dieseldoc
The more I learn about BCG the more I get upset with my uro. He only gave me 6 treatments and said I didn't need any more. Sence then I've had 7 serguries for tumors. Right now I don't have any tumors, so it wouldn't do any good to go to St Louis. It just ticks me off that he would be so arrigant about it!!

T1,NO,MO battling bladder cancer since 2005

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8 years 3 weeks ago #36004 by sara.anne
Yes, Dr. Lamm is known almost as the "father" of BCG treatments. But not only that, while I do not know him personally, he was kind enough to answer, by email, some questions I had as I went through that "adventure." A lot of physicians wouldn't take the time to do that for someone who is not their patient.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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8 years 3 weeks ago #35998 by kmcintosh
Thank you so much Ann for getting back to me. We have an appointment with Dr. Lamm next month and just wanted to make sure were doing the right things.

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8 years 3 weeks ago #35997 by kmcintosh
thank you. We have an appointment next month with Dr Lamm. Just wanted to make sure we were doing the right thing.
Thank you so much.

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