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3 month check up moved forward + pain and concern

8 years 2 months ago #34178 by GKLINE
Martin

Yeaaaaahhh! Great report and stay with it. You are now our shining example of taking charge of yourself. I have a feeling you are going to be around this old earth for a very long time indeed.

I am about to go in for my 2 year checkup. I had all my blood work done, x rays and annual physical done last week.

I am still getting anxious about Friday. It seems as though you NEVER get over it. I am very optimistic, but a little scared at the same time.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 2 months ago #34176 by martin
Dear All,

just an update about me:

- PET/CT came back negative (except for a sinus polyp)
- urinalysis negative
- urine culture negative
- urine citology negative

The second URO said that the next step is to have a cystoscopy in three months. However, he will do it with a flexible cystoscope (my earlier ones were done with rigid).

So I am at this point BC free. However - as Andy Grove said - only paranoids survive, so I keep on with my diet and supplements.

Thanks for the help.

Martin

T1G2
TUR 05/10/2010

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8 years 2 months ago #34036 by sara.anne
Martin, you could be our "Poster Boy" for our constant theme, GET A SECOND OPINION. So glad to hear that you are in good hands now. My impression of medicine in Hungary is that they have some pretty good people...like everywhere, you just have to find them.

Last visited Hungary six years ago. It is one of my favorite places!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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8 years 3 months ago #34008 by GKLINE
Martin

You made the right decision. That was a great move. Now you are in good, caring, hands and you will be on your way to a full recovery.

This is a good time to remind all of us that WE are in charge of our OWN destiny. Martin showed the "take charge" attitude that every patient must have when face with this cancer thing. :angry:

Way to go Martin

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 3 months ago #34006 by mmc
Martin,

Glad to hear that you are now with your country's leading urologist. It's always a good idea to get to the very best you can no matter what country you are in.

Hopefully, he will get to the bottom of things quickly and put your mind at ease.

Wishing you all the best!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 3 months ago #34005 by martin
Thanks for the post. I live in Hungary. The urine culture came back negative again and my uro did not want to do anything about it and said that I worry too much.

I decided to change uro and went to another hospital where I met Hungary's leading urologist. He ordered urine citology (has not been done yet for me) and some basic urine tests. I will also go for a PET/CT next monday.

I am sorry to say that he seems to be a much better professional and I should have started this journey with him first.

The moral is that you should look for the best care even if your tumor is only 1 cm in size. The problem is that when you are prompted with news that you have bladder cancer you can not act really rationally.

Now that my error is corrected I can only hope it will not have dear consequences.

T1G2
TUR 05/10/2010

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