Martin, you could be our "Poster Boy" for our constant theme, GET A SECOND OPINION. So glad to hear that you are in good hands now. My impression of medicine in Hungary is that they have some pretty good people...like everywhere, you just have to find them.
Last visited Hungary six years ago. It is one of my favorite places!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Thanks for the post. I live in Hungary. The urine culture came back negative again and my uro did not want to do anything about it and said that I worry too much.
I decided to change uro and went to another hospital where I met Hungary's leading urologist. He ordered urine citology (has not been done yet for me) and some basic urine tests. I will also go for a PET/CT next monday.
I am sorry to say that he seems to be a much better professional and I should have started this journey with him first.
The moral is that you should look for the best care even if your tumor is only 1 cm in size. The problem is that when you are prompted with news that you have bladder cancer you can not act really rationally.
Now that my error is corrected I can only hope it will not have dear consequences.