I was wondering something

Susan,

I know how you feel. When I was first diagnosed with Superficial Bladder Cancer, my co worker brought me a "Cancer - Relay for Life" T Shirt. Although
I'm sure that she meant well, I really didn't want the shirt. I felt like she was saying, "Tag, You're it."

I want you to do something today. I want you to do just one thing for your health that will make you feel less helpless in this situation....maybe buy yourself some garlic tabs (recommended while on BCG protocol) or some green tea, or take a twenty minute brisk walk....

I'm heading out the door now to go to market to find some local honey and some squash to make a nice casserole...and...I'm wearing my Relay for Life T Shirt....

Take care...please do something to make yourself feel better....

Ro

i'm sorry ,but it makes me cry that there is still such a long road ahead of me. I want it to be gone! It's so hard sometimes .

Hey Susan, Im on my way to the check up in Aug, that follows my 6 treatments we are at about the same place in time ,with me a few weeks ahead of you , I think I will be getting the extra BCG too, at 3 weeks a pop. I hope this stuff works ,just like everyone. atleast theres hope:) and other than being tired it wasnt so bad, more worrysome, I guess it just continues,thank goodness for that.to continue is a good thing.best of luck:)

Susant and Alan--
I'm following close behind you, in that I will very shortly be staring my initial round of 6 weekly BCG treatments. One of the fairly standard protocols, which is the one my uro uses, starts with 6 weekly (induction) treatments, a 3 months re-check (cysto) and 3 weekly maintenance treatments, and after that, each 6 months you get 3 more weeks of maintenance treatments, up to 3 years (with yearly maintenance treatments after that if you are in a higher risk category). You still get check-ups every 3 months during this time I believe. I've read that if the BCG side-effects start to get too severe during maintenance treatments, they reduce the concentration of the BCG and still have the desired effect on your bladder's immune response. (This protocol is sometimes called the the SW Oncology protocol, or Dr. Lamm's protocol.)

Ann

Does everyone usually have to do it all over? I thought maybe i could be cured sort of with the ones i had .