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13 years 1 month ago #1376 by mikmckna
Alyssa,
I can not imagine one "secret" to avoioding the worry. I did find the internet a great diversion since I was able to educate myself while keeping busy. I can not say that I did not go through some personal phobias though. Every trip to the bathroom was an event looking for the next questionable clue. Your Uro / Surg are a key. I met with a few and stayed with the one I felt most comfortable with AND this was not the one from the big hospital with a reputation for handling BC.

Believe in yourself,
Mike
T1-G3, CIS
RC w/ Neobladder 8/22/06

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13 years 1 month ago #1355 by timb
ive had about 30 or 40 cystoscopies over the years, half of which have been resections for biopsies or tumour removal. had many different symptoms after; bleeding, no bleeding, bleeding 3 weeks later after not bleeding, still bleeding 6 weeks later, microscopic blood at 2 months, scabs, blobs, stringy bits, blockups blah blah blah. I recall the that the hospital literature refers to your urine having a "pinkish" colour for "a few days" after the procedure. Nobody knows, everyone is different. I used to figure that they'd cauterised an area of the bladder, it scabbed over, about 1 - 3 weeks later the scab drops away and this is followed by more bleeding just as would happen if a scab dropped away from a cut on my hand. also, I've learned that debris can sit around in the bottom of the bladder for weeks and weeks before it's flushed out and can be interpreted as "new" material. I tend to not worry too much. If someone's been fiddling with my giblets then I allow for a certain amount of unsettled behaviour down under. That said, I'm not afraid to pester my surgical team if I feel instinctively uneasy about something that's going on. Fortunately I have a lot of trust in my team. Even though I can hear them wince occasionally when they realise it's me on the phone.

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13 years 1 month ago #1342 by Whitlo
I agree with Lauren, but don't always take my own advice. I try to eat healthy and I am supposed to lose weight but when I lose any it freaks me out and I'm left wondering did I lose weight because I'm eating right or because of cancer. As I said earlier aches and pains make me crazy. I think I have to just keep telling myself to knock it off. I also thank God for every day, I actually talk to God quite a bit, I'm sure he/she is equally as fed up with my whining as you all must be, but hey isn't that what a forum is for?

Thanks
Whit

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13 years 1 month ago #1341 by lhpdogs
Alyssa,

it helps to take all the positive steps you can to keep healthy - I bought books on what to eat if you have cancer, what to avoid eating, what supplements were good, etc. I decided if there's any way I can convince myself that I have CONTROL over my future health status, then that's the area I should focus on.

And I also thank God every night that I had another healthy day.

Don't just sit and let it take over your mind - you take control of IT, and you will feel much better every day.

Lauren

TaG1 12/05
3 recurrences
BCG started 9/09

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13 years 1 month ago #1339 by amy
Chris

How do you stop the worry? What is the secret?

Alyssa

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13 years 1 month ago #1330 by cta7978
Whit,

I went through a hypochondriac stage as well, worrying about the cancer metastisizing.. I went to the doctor several times worried about aches and pains.. I was self testing my urine with strips every morning... It is scary thinking about the possibilities, after a while, at least for me, I finally settled down (about 4 months after my surgury). Now I don't worry about it very much.

Chris A.
Diagnosed T1G3 - 3/01/06
37 yo, Seattle, WA

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