The dark side of the Cancer Card

16 years 5 months ago #9526 by Gene Beane
Replied by Gene Beane on topic The dark side of the Cancer Card
Ditto's Heidi, some things really get off the mark. Its about getting thru the surgery and recovery. Everything else is not important. I thought today how I felt bad for Gene as he sprung his first leak in his bag, we are working on taking an overnite get away and he is building up confidence to leave the area for a 2 hour drive and a nice day at a Detroit casino, staying over. Just nice to get away and see other things. Other than putting lots of food in the cats dish and throwing together a couple nice outfits not much planning. I am thrilled we are going to do it. (were almost 6 weeks out of surgery) I just hope he is ready, it'll be a good test. But Zack made a good point about watching out when in recovery, the patient doesn't know when to release from all the attention either, so me as the caregiver must do it at a step at a time. Afterall he is wearing a bag! Ginger

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16 years 5 months ago #9505 by Jmema
Replied by Jmema on topic The dark side of the Cancer Card
Heidi,
Zach has bragged about you on this forum. You are a wonderful supportive couple and I hope you are both blessed with good health and happiness for many years to come.
At 73 I have been the caregiver (hubby had triple bypass) and the patient (I had RC with ileal conduit 1 year ago). Just my opinion...I would rather be the caregiver. The caregiver gets to "walk away" when they need to whereas the patient is always the patient. We both found that in time the hard times fades but with cancer there is always that little part of you that wonders "is it really gone for good".
You and Zach should write a book. You are both so good at it.
Blessings...Jean

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16 years 5 months ago #9503 by zachs heidi
Replied by zachs heidi on topic The dark side of the Cancer Card
hi everyone, it's with my husband's trepidation that i join this group, but after reading this thread i couldn't help myself. and looking over my shoulder, zach just advised that i should not cause a situation where he needs to come in and put out the flaming wreckage ;D. my dear husband is quite a word-smith. i tend to speak more plainly, so here i go with my first post.

i have to admit that my husband has one of the best attitudes going (not that many of you don't!) and he keeps his head about him, so i've been pretty lucky as the care-giver of a cancer patient. but as a spouse, a woman, a friend, a maid, dishwasher, gardener, bread-winner etc. i am dismayed at some of the attitude i see here. if ever there was a time that you should not be thinking of yourself, it's when your spouse or loved-one is diagnosed with, and/or going through cancer treatment. it's time to be the bigger person.

your loved-one is facing at minimum, pain, fear, uncertainty and the possibility that they may die. don't add to their grief with worries of your house being clean, or how it will affect your tennis game or sex life - for cryin' out loud, you should be praying that there WILL be life. you have absolutely nothing to gain, and frankly will only be adding pain and misery to the life of someone you pledged to love and honor, by verbalizing your self-centered concern. suck it up.

no - you don't need to be "honest" with them. what would it help if i said "this mucus infused urine that i have to drain out of your cath-bag makes me want to vomit?" the attitude that tells your patient that they are inconveniencing you, a most likely healthy person, does not contribute to his recovery, and i'd dare say without any scientific research to site, it probably does harm. someone who just lost a part of his/her body to a radical surgery would probably voluntarily give up a digit to have whatever you are complaining about.

cry into your pillow where they can't hear you, do 100 sit-ups, take a hot bath while your patient is sleeping, have a glass of wine if that helps, but do not burden someone with cancer with your petty complaints. have you considered that by being "nice" you might even improve your relationship?

i have a million practical suggestions for getting through this time, but the number ONE thing is to put your needs up on the shelf for a while. and don't read more into this than exactly what i'm saying. i'm not talking about never sleeping, bathing, eating, doing laundry etc. do what you have to do, but be there for the person who is recovering from treatment.

if your tennis game or social life is more important than your spouse's recovery, then you have bigger problems than cancer.

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16 years 5 months ago #9491 by Gene Beane
Replied by Gene Beane on topic The dark side of the Cancer Card
Eileen,
I didn't need any help at all with Gene. He can walk after surgery, they aren't at all bedridden. at least in our case. We had a nurse who visited twice a week to check vitals and to help with the outside bag changing. Our house is also on the large side, but it didn't get any dirtier because of the surgery. If you feel the need for help call a caregiver service, they can come 4 hours a day, whatever you wish, but I wouldn't think you will need them, just let it happen, and relax, it will all take care of itself. I stayed home with him 24/7 for the first 2 weeks, I wouldn't want anyone else doing it, after that I could go to the beauty shop , and the routine girlly stuff, leaving him for a couple hours at a time, but I would say the first 2 weeks it would be nice if it could be you. I will be glad when its over for you too as your ready all ready. Ginger

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16 years 5 months ago #9483 by wendy
Replied by wendy on topic The dark side of the Cancer Card

Hi Eileen, Zach and Gang,

Great post Zach. When someone is in pain it's not manipulative to moan and groan and people post-op are in need of serious assistance no matter what type of cancer surgery it was. I was a mess after my mastectomy, drove my husband nuts with my moaning and groaning; after we found out it was nerve damage I squeezed a bit more sympathy out of it (and earned it).

Eileen, you should inquire about visiting nurses. It sounds like it would help you both feel more confident about what you might face. Of course things may go so smoothly that it's unnecessary but so what. If I were you I would go for it. It's unknown territory for you and knowing a professional is going to check in can only help, I'd say.

What about a bedside potty so you don't need to lift him for that? Might be helpful in the beginning, or might be overkill. Consider a shower chair as well, just in case. The ACS sometimes loans them out.

Have you read WebCafe's survival guides about what to expect pre and post op? Might be helpful..

Try and keep in mind that the situation is temporary and your lives shouldn't be terribly disrupted for more than a few weeks. Remember those wise words, "This too, shall pass."
Wendy

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16 years 5 months ago #9480 by Mike
Replied by Mike on topic The dark side of the Cancer Card
Eileen you can get home health service for about 2 weeks after Mike gets out of the hospital and this is mostly for wound care. Now my wife is an LPN and my surgery week she took the whole week off. When I came home she took about 3 days off and I had the home health nurse about 2 or 3 days a week. The first week I used a small cooler with water and sodas in it plus a sandwich or two so I didn't have to go down stairs. I went for the Neo my surgeon and he is an excellent one saw some cells by my uretha at the time he did not like the looks of so he opted out on the neo and did the Indiana Pouch. I am ok with this ez to use, no pain, and no leakeage. We live in a nice home not huge but not small and we never considered a cleaning service. When I got home I got out of bed on my own now and then I needed a hand.
Cancer changes your life forever and I found this to be so true for both me and my wife. I'm an ex trucker and my whole life is upside down but I'm still alive and as of now I am cancer free after a hell of a battle. To get through this you have support eachother because it is a long journey. So if like you said you have no patience or get angry fast man that is not going to be good. I can't tell you how to it I been married 30 years to an angel who I put through alot of shit and she hung in there with me and without her I don't know what I would have done. So after the first 3 days she went back to work I was home alone and I made out just fine. Joe

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