Indiana Pouch

Linda,

I also had diarrhea a few days after surgery. Came on so suddenly. I could bearly lift my head never mind make it to the bathroom on time. I was horrified and so embarassed.

A wonderful nurse came in and calmed my tears. She was so assuring and kind. She made all the difference.

I'm so sorry that you had to have this experience. This is when you feel most vulnerable. You make enough noise that this creature never has a chance to do that again to someone! grrr-rr--rr.

You have a better evening.

Gracie

They did send it to the lab. It wasn't bloody, primarily mucus.I have met with the nursing supervisor, she was very supportive.

Linda

Sure wish i'd been there..i'd kicked her butt waaaay out of that hospital. One would wonder where all that came from?? Was it bloody or coffee grainish? I know you said you had IBS prior to all this. You need to contact your Uro/surgeon and let him know what happened. You need a culture to make sure its not e-coli or some other hospital related infection. You need hydration.
Make as much noise as you want. Tell the nursing supervisor what went on and get this treated right now.
Pat

I'm at day 6 post RC. Last night was a bit of a set back. I ended up with uncontrollable diarrhea. Then to make bad into terrible, I had a nurse who was not at all helpful. Asked me why I didn't take care of it prior to reaching that point. "Call me when you're done and cleaning up" and the best yet, "I don't know why you're crying, you need to stop b/c we will be working together all evening." Fortunately my husband has been staying with me. He ran home just prior to all this but took care of me thru the night. When my morning nurse came on, he could see I was upset. Told him what went on, he got the nursing supervisor of the hospital. I have always been an advocate in one form or another and yet I allowed her to walk all over me. We must not allow others to treat us like that. This certainly isn't something we chose.

the anti-nausea drug they gave me was Phenergan...but they now have Zofran and Ativan also works. The nausea just comes with the territory so go ahead and take what works best for you..it will soon abate. I would have a few periods after i came home that it would strike and i had my script and took them..but by 6 weeks out i didn't need them.
pat

Linda,

I'm so excited to hear of your recovery; yes, you are making progress altho. it may not seem that way; have to remember it is a major surgery and the healing takes time. I am amazed you found your way to a PC. I was so much in a fog the first week, I was very well sedated and was also unable to keep any food down. They had to re-adjust my meds; I asked them to give me Pat's remedy...forget now what it is called, but anyway, after that I was able to eat and then get that BM out of the way. I think that was like day 8 or 9 for me...and released on day 10.

I have put several cards in the mail to you so hopefully you have gotten at least one of them. You have been in my thoughts continually.

And Gracie is right...a pillow is a must...be certain to have one or something soft when you leave the hospital for the trip home; to protect the stoma from the seat belt...and if you wish to be really comfy, take one to sit on if the roads have lots of ruts in them.

Take care...get lots of rest....and congratulate yourself on your bravery and strength...you done good!!!!! Hugs,