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feedback on progression, treatments

3 years 1 week ago #50103 by pjm
Any experience with Valrubicin out there? Treatment for BCG resistant CIS.

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3 years 1 week ago #50065 by sara.anne
That is what we are here for!!!

Remember that we aren't doctors, but just patients like yourself who have "been there, done that!"

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 years 1 week ago #50064 by pjm
After I meet with surgeons, may I ask you some questions? Probably next week or so.

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3 years 1 week ago #50063 by GKLINE
I am sorry that BCG didn't work out so far. But I am a big proponant of the "Get That Bladder out of There!" theory.

I never had a choice of BCG..... I went directly to RC..... Did not pass Go.... did not get BCG(not given the chance)
So please don't try and save your bladder at the expense of your life.

You are at a great Place for advice. Please do yourself a favor.... Take it!
If they say RC..... You say OK.

There is life after RC....... I am living proof 7 years!

Best of Luck

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: pjm

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3 years 1 week ago #50059 by Alan
Had to chime in. Sometimes interfuron is added to BCG for an extra kick. Something to discuss with your Doc.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 years 1 week ago #50056 by sara.anne
University of Chicago is a GREAT place for bladder cancer treatment! Good choice.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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