7 years 9 months ago - 7 years 9 months ago#42947by Alan
Sorry you are part of our "club". You are smart being diligent and asking questions and there are many with good info. I am not familiar with the Boston area but check back in the next few days someone familiar in that area should have a good recommendation. You want someone that does a heavy case load of BC as many UROS domore prostate problems. On the wait. Obviously you want clarity but, usually a couple of weeks won't be a big problem as you are basically a month from your initial DX. Abscence of knowing where to go often a teaching hospital is good. Getting a second opinion is also extremely important as this cancer is often under staged. Which in most cases normally call for a second TURB (transurethal resection of the bladder) to be sure you know what you are dealing with staging and grade.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Last edit: 7 years 9 months ago by Alan. Reason: clarity
Hello everyone. This July 27th. I had cysto and biopsy done. It came back with a discrepancy. The first part stated no invasion seen. No muscle identified. 2/3 down the report Muscularis propia (detrusor muscle) is present?? Go to my local hospital to get a second opinion August 13. The oncologist, who pointed that out to me, sent for the slides and a cat scan that I was told came out negative. This Monday August 27th. I have my appointment to see the doctor and another doctor that I had to wait the 2 weeks because he was on vacation. I definitely was not to thrilled about having to wait. Anyway, I am preparing my mind that the cancer is invasive. If I have to end up having a Cystectomy, Boston,Ma. has entered my mind. Does anyone know of any good doctors in Boston and it seems the 2 hospitals stand out are Mass General and Dana Farber Brigham and Women's. I am sorry if some of my spelling is not the best. Any and all opinions will be greatly appreciated. Thank-You. Louie