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Potential RC. Providence,R.I.

6 years 8 months ago #42966 by realdeal
Hi Sara Ann. Thank-You for the encouragement. Yesterday, Dr. Dragan is scheduling the TURB in 2 weeks and he asked me if I wanted to see Dr. Dalbagni before OR after the TURB. I said before but now I was wondering if it might be better after. Louie

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6 years 8 months ago #42961 by sara.anne
Sounds as if you are on the right track!!! Dr.Dalbagni
is an expert in bladder cancer! As for another TURB, that also is excellent procedure; many times bladder cancer is underdiagnosed. It is often very useful to go back a second time, with some idea of where the problem areas are, and take another look.

Best of luck to you!

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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6 years 8 months ago #42960 by realdeal
Hi Sara Ann. I got to my appointment today and met Dr. Dragan Golijanin, who has experience in bladder cancer.etc. Mentioned I also wanted to get a consult either in Boston or New York. He mentioned a Dr. Dalbagni at Sloan Kettering in NYC. I thought he mentioned he was his teacher but I have not been able to find on line anything to that effect. He did have quite a number of journals. He offered to set up an appointment to see him in the next 2 weeks AND also wants to go back in to see just how far the cancer has gone in regards to the muscle area. He thinks it probably has not reached the muscle, but he wants to see for himself. Louie

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6 years 8 months ago #42957 by sara.anne
You need to be evaluated at a center that has urologists that specialize in bladder cancer. You have already identified several that are close enough for you to go there, at least for a consult.

Carcinoma in situ (CIS) is a high grade form of bladder cancer, that can often be successfully treated with BCG infusions. High Grade means that it has the potential to spread. This is why you need to see a specialist.

My initial diagnosis was CIS. After undergoing the BCG treatments, I am now four and a half years out with no recurrence. This is a highly treatable condition, but one to pay attention to!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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6 years 8 months ago #42956 by realdeal
Hi Sara Ann and everyone. Muscularis propria (detrusor muscle) is present. Lymph- VasculaInvasion: Not identified Microscopic Extent of Tumor: Non- invasive papillary carcinoma Also: Carcinoma in situ is present in adjacent epithelium and involves von Brunn's nests. Louie

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6 years 8 months ago #42949 by sara.anne
First, take a deep breath. There are some things we need to clarify before we really answer your questions.

Did the pathology report say "muscularis propia was present" in the sample or did it say that the tumor extended into the muscularia propia? These are two very different things.

If it said that muscle was present in the sample, it means that the urologist did a very good job during the TURB. Having muscle present in the speciman means that the pathologist can ascertain that the tumor was superficial and did NOT extend into the muscle. THIS WOULD BE GOOD NEWS.

If it said that the tumor extended into the muscle, that means that the cancer has gone a bit further and additional factors must be considered.

You should be seeing a really good urologist who treats a lot of bladder cancer patients. Many urologists see bladder cancer occasionally, but specialize in prostates. Oncologists usually do not treat bladder cancer unless it has reached a point where chemotherapy is indicated...and then they still work with a urologist.

Mass General is an excellent choice, as would be Memorial Sloan Kettering in NYC or Johns Hopkins in Baltimore. If you go to the Home page of this web site, at the top, click on HELP. From the menu that appears, choose Researched Resources and click on it. To the right are three more choices (!)...click on Doctor and Center Locator. Here you can read about all the places near you.

Best of luck to you, Louie. And we are here to try to answer any questions you may have.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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