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trying to find out my STAGE & GRADE

7 years 9 months ago #36570 by Patricia
Well he looks a bit dazed in his picture but his background is impressive....but i always wonder why such prestigous places like UCSF, and USC/Norris who are renown for bladder cancer did not keep him?
http://www.urologyspecialistsflorida.com/Our_Doctors/Kapadia.html

He's obviously pretty bright but why would he take a sample during a cystoscopy when you know he cannot get a complete sampling for pathology? Thats dumb! Hopefully he's better at the TURB and then you can find out your stage and grade...but to be sure since this is a private practice i would send the samples to a top urological pathologist at Johns Hopkins for a second opinion. They get understaged a LOT.
Good luck...........Pat

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7 years 9 months ago #36569 by mmc
You are right. I read it wrong. It means there was not muscle tissue in the sample that pathology analyzed.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 9 months ago #36568 by harleygirl
I thought they meant that there was no muscularis propia tissue present in the sample. In other words, the doctor did not go deep enough and get tissue from the muscularis propia. Could that be it?

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7 years 9 months ago - 7 years 8 months ago #36558 by mmc
It says WHO "High-Grade" 2 of 3?

"The World Health Organization classifies bladder cancers as low grade (grade 1 and 2) or high grade (grade 3)." (from eMedicine).

You need to call your doctor and let them know you want him to call with the pathology results and to explain them to you.

In the mean time, it says negative for invasion of lamina propia. That's a good thing. It means that the cancer is contained to innermost layer of the bladder mucosa.

It also says negative for muscularis propia (muscle) "in the biopsy material". That means there was no muscle in the biopsy sample for them to analyze. However, if it was not in the layer that comes before the muscle, it shouldn't be in the muscle.

The doctor should be able to tell you more on grade or maybe someone else here. Usually grade 1 is low, grade 3 is high and grade 2 is 'in the middle'. According the quote I got from emedicine, WHO considers a 2 to be low grade also so I don't understand why is says High Grade (Grade 2 of 3). Unless they started some new thing of breaking high grade into three levels, which I've never heard of.

Busy doctor or not, you want to know the answer to your question. Call up his answering service and tell them you are freaking out over your pathology report and don't understand what it means and you need a call back asap. Or...just wait till Monday and call his office.

Getting the 2nd TURBT is the right thing to do so he's doing the right thing in that regard.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 9 months ago #36554 by dieseldoc
Hi, sorry your here, but glad you found this site! Your doctor could have and should have took more time to explain this to you. You need to be finding a bladder cancer specialist. There will be more people on line in a bit with more information for you. Listen to them please, they know what they are talking about. And please join use in the chat room at 8pm easturn time tonight!

T1,NO,MO battling bladder cancer since 2005

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7 years 9 months ago #36553 by 1luap2
I had cystoscopy 2/8/11.
Bladder Biopsy
Papillary Transitional Cell Carcinoma,WHO High-Grade{Grade 2of3}
Negative for Lamina Propria Invasion.
Negative for Muscularis Propria in biopsy material.
I am confused as to my Stage & Grade.My Uroligist is Very busy
and did not explain this to me.I was told I will have a TURBT
on 3/3/11 and depending on the results BCG treatment.I have blood in my urine about every other day,which clears up after drinking liquid.I live in the St. Petersburg,FL.area,My Uroligist is
Katan Kapadia,MD. and having TURBT at Palms of Pasadena hospital.
Will I find out more about my Stage & Grade after my TURBT?
I had CT scan and was told it was clear.I sincerly thank anyone with any comments.

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