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Waiting for the TUR !

9 years 7 months ago #32209 by Rockyiss
Hi Ken , Just wanted to say if it was me and I could get into the cancer center in two weeks that is where I would go. I know it probaly scares you to wait that two weeks but if the local dr doesn't get it right the first time then you have to deal with that . The chances of the cancer center messing up are slimmer.
My local uro didn't tell me I had cancer till after the turb so he took away my choice of going to john hopkings first. But I then left him and went to jh and am doing good.
We are so lucky to live in a nation where wating two weeks seems like along time. You need to know there are alot of people out there that live with this cancer. My brother had it,(ten years) I have had it ( three and ahalf years) and now I just
found out today my nephew has it. So take a deep breath and relize waitng two weeks probaly won't hurt you. Blessings Rocky

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9 years 7 months ago #32208 by Kenneth
Talked to the cancer center in Houston and 6/15 is the soonest I can be seen. I did not want to wait 9 days much less 2wks. but we will see. I placed a call to my Doc's nurse and I am going to question her about how many of these cancers they work on and will decide then. Thanks Everyone!

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9 years 7 months ago - 9 years 7 months ago #32207 by Alan
Ken,

Elgin gets you a little closer to Houston than Georgetown! I'd just make sure that he sees plenty of bladder cancer patients. Nothing like experience translating into skill. My guy even went so far as to re-read the CT scan (he actually read it just after transmission to his office, the radiologist misread it as no tumors and he saw the tiny tumor!). Then, as I asked about grade possibly being wrong from the pathology from the TURB a few days later-no sooner as I asked he stopped me and said he personally read them and said it was no mistake-it was high grade. He is thorough. I was actually ready to get a second opinion until these and other examples about him surfaced. He is on his game! Nonetheless, it doesn't hurt to have one especially if you have any doubts or questions. Keep checking/asking. It's a journey but, with lots of hope.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 7 months ago #32206 by Kenneth
Thanks Alan, I live outside Elgin. My URO lists BC as an interest and seems to know what he is talking about, talks like he does anyway.

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9 years 7 months ago - 9 years 7 months ago #32205 by Alan
Ken,

Just on a hunch are you Georgetown area? I live in New Braunfels. MD Anderson is a great option if you can. I did stay in New Braunfels as my URO has extra training and sees many cases of bladder cancer and treated "textbook" my cancer! Trained under Dr. Lamm when he was at UTSA. I still keep notes on MD Anderson and won't hesistate to go if I have additional needs. If I had any reservations on my URO-MD is where I would have gone.

I had 2 TURBS. Textbook case says re-do if there are ANY doubts about margins-or high grade pathology report. Thus a follow up TURB was done on me. It is a relatively simple procedure so don't stress too much over it. Just make sure someone can drive you home do to the anesthesia. Yes, I did spasm for day after and you'll pass a little blood but, your doc should fill you in what to expect.

You'll find people on this site extremely helpful. They are an incredible source. Use us.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 7 months ago #32204 by Kenneth
I live about 25 mi. outside Austin. About a 2hr. drive to Houston. I have been to M.D.Anderson's website and am waiting on a call back from the Genitourinary Cancer Center's new patient office. I think I may try to go there instead of letting my Urologist do the TURBT. I feel that if he can diagnose bladder cancer from a cystoscopy and a bladder wash that I need to get to M.D.Anderson for the best treatment from the gitgo. I'm not complaining about my Doc,he is a decent guy but I'm kinda freaked out right now about this whole deal. Sorry for the rambling. Thank ya'll very much for this forum. Ken

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