Forum

× Welcome click the New Topic button to post

Just starting the journey

10 years 1 week ago #28415 by vgau
I just have the one Ct scan on my lung and was told to wait at least 2-3 months and then see the pulmonary specialist. I think they will then order another scan so we can make comparisons and diagnosis.

I have been so healthy up to this point in my life so I have no previous things to compare with the lungs or my bladder.

Therefore, we really have no way of knowing how long the cancer has been in my bladder either.

That's why I feel really lucky. I went to an emergi-care for throwing up and ended up finding out all this because of the urine sample they did. Trace amounts of blood in my urine and so she sent me to a urologist. Who knows how long I could have gone never knowing I even had cancer.

Dx 10/5 Non Invasive Papillary

Please Log in or Create an account to join the conversation.

10 years 1 week ago #28413 by Patricia
Vi...i have the same thing. Do you have any previous x-rays to compare it to?
A nodule in the lung could represent infection, scar or a tumor. Risk of these being cancer depends on age, smoking history, previous cancer history, etc. If there was a previous CT/chest X-ray more than 2 years ago and the nodules were present then the risk of these being cancer is low. In the midwest USA, most of us have a benign fungal infection called histoplasmosis, which may appear as non-calcified nodule. In that case you don't need to worry. An infection may appear as multiple nodules as well. A chest CT would be helpful to figure out if there are more nodules and their sizes. The CT will also be helpful to find out if there are any swollen glands in your chest. You should see a pulmonologist after the CT. Your pulmonologist, depending on your risk factors, will decide whether you should have follow up CT scans every 3-6 months or if you should go for a biopsy. Serial CT scans are indicated to find out whether they change size, shape or character over time. Cancer usually will grow in size whereas a scar or nodule from histoplasmosis will remain unchanged.
Pat

Please Log in or Create an account to join the conversation.

10 years 1 week ago #28412 by vgau
My doctor said the same thing that you and Pat mentioned about what has been done so far. Right now we are hoping there is not a recurrence.

When he checks it again he will do a surgery (Turbt?) to remove things in the hospital if needed.

Right now, my new concern is that they found a non calcified nodule on the base my lung when they were doing some scans of my urinary system.

I really hate all this :(

Dx 10/5 Non Invasive Papillary

Please Log in or Create an account to join the conversation.

10 years 1 week ago #28410 by mmc
Vi,

I don't think you can have just one cancer "cell" and have somebody find it. It sounds like you had a small tumor but that will be made of lots of cells. Seeding is when they take the tumor out but some of the cells attach to the bladder wall and start to grow a new tumor.

I think it's only an hour for you to get to UCH and they have a very good bladder cancer center.

It is often advisable to get a re-TURB done in a surgical center or hospital about 6 weeks after the initial one just to be sure that they got it all.

Good Luck!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

10 years 1 week ago #28409 by DougG
Vi,

Please join us in the chat (click on CHAT ROOM) on Sunday evenings at 8 PM (CST). There are usually a number of people who are on who can answer lots of questions you might have.

Anita (Doug's wife)

Anita
Forum Moderator
Caregiver

Please Log in or Create an account to join the conversation.

10 years 1 week ago #28406 by Moonerj
Hi IV
I too was initially dx with TA low grade, except 1 of my tumors was large. My Turbt was performed in the hospital.
Because of the size of the 1 tumor my Uro and I agreed to starte BCG treatments 6 weeks after the Turbt.
I have had 2 early recurrences, this group convinced me to get a 2nd opinion at a top cancer hospital.
The 2nd opinion agreed with my path slides and treatment protocol.
After my 3rd Turbt Mitomycin C was instilled in my bladder, followed by 6 weekly BCG and 12 monthly BCG maintenance treatments.
I am nearly 2 years cancer free now.
I agree with Pat and Mike, and get that 2nd opinion at a top bladder cancer hospital.
In your case TA low grade small tumor, BCG is not used unless there is a recurrence.
I wish you all the best,
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 2021 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: njumandrow652
Yesterday Total Opened: 1 Yesterday Total Answered: 5
Total Posts: 52901 Total Subjects: 6887 Total Users: 8469
Powered by Kunena Forum