I'm into my fourth year of bladder cancer, age 72, had a turbtt and bcg and no new tumors after many cystos. But my FISH tests keep coming back positive. An oncologist told me that I am a "wait and see" patient, that I just have to wait to see if I get any new tumors, and this makes my URO go crazy.
I have another cysto scheduled for February. In the meantime I had another FISH that was positive. My cytologies sometimes just say "abnormal."
I had the procedure where the URO goes all the way up to the kidneys to look around. I did not tolerate the aftermath of that procedure. I had to have the stent removed early and afterwards I was in so much pain that Norco and Advil were not helping at all.
Last Friday I had a scary incident. My pee came out dark brown, color of coca cola, only a little bit. It was nothing like peeing blood which is reddish. This was dark brown. It has not happened again. I told my URO and he again mentions that he will want to look in the kidneys and to go get another FISH. I don't know if I could live through another one of those kidneys procedures, unless maybe they put me in the hospital and keep me on dilaudid or morphene for a few days.
Appreciate your comments.
