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Mike Mann
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Online Status OFFLINE
Member Since 16 years ago
Last Updated 16 years ago
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I too had a 6 month cystoscopy this morning and it was clear. I have much more discomfort than with the other ones though. But I am off to a ladies retreat on Lake Huron so I’ll deal with it! The sun is out and I’m ready for a couple of days away from it all. We had a devastating senior apartment fire recently in the community in which I work (made national news) and though the trauma didn’t happen to me, being there in the midst of it helping the 200 evacuated seniors has had an emotional affect on me and I am a little weary. I know I seldom post but I am always here listening and learning. There is so much knowledge here and not just about cancer, perhaps just as important, about living. Here’s to rest, relaxation and renewal.
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I know this is about BC but I’m concerned about the statement “I don’t feel safe in my own home”. Are you OK? I’ll choose to not over react and assume you are venting as we all need to do, but really if you are not safe please know there are always options in our lives. It is just so hard to see them sometimes.
Anyway, we care about you here and as it was said, someone is almost always on site to listen.
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Though I do not know you or your father the tears started when I read of his passing. It has been 6 years since both my Mom and Dad died. I remember feeling like I had joined a club I didn’t want to belong to. (Perhaps the parentless child club…I don’t really know) I asked some older, wiser women than myself when I would stop missing them and they told me never. It is ix years later and I believe them to be right. But life is good (even with BC) and there are many, many years of memories and lessons learned and love to pass on to the next generation.
I really didn’t mean for this to be about me. I really just want to offer my condolences to you and your family during this sad time.
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My urologist also recommends the Theralogix. I haven’t seen it mentioned on this forum before until you brought it up. (I’ve only been here a few months though). I was interested in ordering it but haven’t due to the cost. So I guess it’s extra carrots and sweet potatoes for me!
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Everyone responds different and my uro also did not make a big deal out of it. I was still a little concerned. However, I had 6 weeks of mitomycin, finishing in Dec 07 and didn’t have a moment of discomfort or any side effects. I was grateful as I know that is not everyone’s experience. Good luck to you. Hope you have an easy time of it.
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Hi Rosemary, the second one says it was high grade invasive cancer, present in the muscle bundles but not the muscle wall,they just told us that yesterday. I have a call in to my oncologist to see if he has any answers for us.
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Rosemary,we have not seen the conflicting report, although we have requested it today probably get it next week when the offices are open. we were told by the second surgen that he saw no cancer in the muscle wall. so thats where we stand on one hand I would like to go with good report and just be happy, but Id like to be more sure. thanks
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mike
MemberFebruary 1, 2008 at 11:54 pm in reply to: My Doctor gave us good news after a second TurRosemary, no the second turb found no cancer in the muscle. The first lab that saw muscle invasive tumor was done with the specimen from the tumor of,my first turb. the conflicting report was done from a slide, could this fact effect the pathologists findings slide versis specimen? thank you sodacat
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thank you all for sharing I had my latest path report e mailed to me today. it says the tumor is mainly low grade with a focus of high grade carcinoma5% and there is no muscle or lamina invasion.what do you think? thanks sodacat this is nothing like the first report in dec.
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My first Doctor sent me to the second doctor who saw the pathology report and disagreed with the results and went in to remove the remainder of the tumors left by the first surgen, the first surgen said there was too much blood and was unable to see well enough to remove all the tumors that were present, I had two transfusions while in the hospital, so that part seems reasonable.
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Hi Pat, two different doctors and two hospitals.
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I want to be happy with the last pathology report but can they be so compleatly conflicting should I have a third
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That’s what I had. Mitomycin immediately after my TURB and after I healed, 6 weekly treatments of it. I also had no side effects and my first 3 month check-up done this month was clear. I now graduate to monthly maintenance treatments. Best wishes to you for the procedure and treatments!
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mike
MemberJanuary 23, 2008 at 9:15 am in reply to: IF YOU ARE NEWLY DIAGNOSED OR HAVE A REOCCURANCE GREAT SECOND OPINION ARTICLE:Dhey Karen, Thank you .very helpful reading,have a great day :-*sodacat
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Pat, Im not Seattle,Im from Florida,but thanks for the info.sodacat :)I guess I got off tract in Lynns post, sorry,my friend