16 years 5 months ago #10974 by wendy
Replied by wendy on topic

Dear Ian,

I am sorry to hear that it seems you've been upgraded with CIS. You did get the Mito? And you're planning to start BCG? Just want to get that straight, and also very interested to hear when you are going to be able to switch to the specialist, any news about how that's progressing?

And please update us when the pathology results are given to you.

I can hardly believe this latest misfortune you've suffered and have never heard of someone getting the bum's rush before they were able to safely void, post TUR...I'm glad you stood your ground and demanded what was needed. Not thrilled with the attitudes shown you, it seems so heartless to discharge someone when they are in pain, but it's happened to me here in the Netherlands, too. I remember standing in the hallway crying "Help me, I'm in pain" and everyone walking around me. I signed myself out after a night. That was for a bad abscess in my jaw and not the cancer center, where they are exceptionally kind and considerate (no kidding either). But it seems to me that I'm expected to tolerate more pain than I'd like. Pain's a subjective thing, and thankfully we don't remember it afterwards.

Please let us know what it was that was causing the blockage. I'm under the impression all tissue is removed during a TUR, and that scabs can be present in the voids up to 2 wks later. But my question is, can that be a scab so soon after the resection?

So sorry you've been going through such nasty stuff and wish you immediate relief.
Hugs,
Wendy
PS I'd taken a trip to France when you posted this, so wasn't aware until today when you PMed me, thanks for keeping in touch my friend.

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16 years 5 months ago #10866 by ddoyle
Replied by ddoyle on topic
Warren,
He didn't say but you are exactly right -- it's all about time and money. A bit of sadism also. At least they don't try to do rigid cystos in the office -- they'd have to strap the patient down. :P
David

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16 years 5 months ago #10862 by wsilberstein
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Hey David,
I wonder how long they left the lidocaine gel in before they compared it to KY jelly. If they were in a big rush like some of our urologists seem to be , it's no wonder they didn't find a statistical difference. It's like saying anesthesia doesn't help for surgery because you start the surgery before the patient is asleep.
My new urologist left the room long enough for me to feel the numbness in my penis. The dilation of my urethral stricture still hurt, but I'd hate to think of what it would have been like without anything.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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16 years 5 months ago - 14 years 10 months ago #10840 by egtmcsq
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16 years 5 months ago #10815 by ddoyle
Replied by ddoyle on topic
Ian,
I went in for a cysto back on 11/16 and when the doc was preparing to use the lidocaine numbing jelly I asked him why he doesn't wait but two or three minutes before proceeding with the flex scope. He said that he didn't really think the numbing agent helped much and that he'd read about a study in England where they did a study where they substituted KY jelly for lidocaine and noticed no difference. This reminded me of your posts back in October on the same topic. Bear in mind, this Uro told me once that he'd never had a cystoscopy. Maybe he should run the test on himself ;)

David in Houston, TX

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16 years 5 months ago - 14 years 10 months ago #10803 by egtmcsq
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