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Just plain sick of it

13 years 8 months ago #33423 by Humpy
Replied by Humpy on topic Just plain sick of it
I watched my father suffer through BCG treatment after BCG treatment. It was terrible.
I know what you are going through.

When I was diagnosed, I was actually relieved that BCG was not an option,
and RC was the only way to go.

It may sound silly, But I am glad to have had an RC,
donated about 3 months of my life to recovery, and have it all behind me.
I don't think I could have gone through BCG treatments.

I really believe a RC is less painfull than BCG. Mentally & physically.
Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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13 years 8 months ago #33421 by GKLINE
Replied by GKLINE on topic Just plain sick of it
It is OK to vent here. We all know how this roller coaster ride works! So, please vent away! You couldn't find a better or more sympathetic set of ears!

George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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13 years 8 months ago #33419 by mmc
Replied by mmc on topic Just plain sick of it
Yes, it sucks and yes it is certainly the place to vent because we all certainly do understand that it sucks.
Sorry to hear the treatments are getting you down. You do want the reaction because that indicates it is doing its thing but if it is too much of a reaction maybe the doc can lower your dose?

Hope things are looking up again soon!

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 8 months ago #33417 by Cynthia
Replied by Cynthia on topic Just plain sick of it
Never lose track that there are all sorts of suffering. There comes a point that you are really glad to be alive but this whole thing does suck. And you get sick of dealing with it, and the pain, and the bother and the never ending nature of it. Yes it could be worse there is always someone who has it worse and be grateful for what you have but today you are past it. Invasive or non invasive we all have things in common, check and rechecks, procedures, treatments and on and on. We all deal with it and try not to complain and just not think of it anymore than we have to. Yes we are grateful but we are human and at times it is hard. That is one of the things this site is for; when it won’t fit into the box anymore bring it here if it helps. Then we go on because that is what we have to do and put it back into the box until the next time. If you are like us for the most part you have a pretty good life but there are days ; let’s just hope we don’t all have one on the same day that would not be pretty.

A discussion on reduction of BCG next time might be a good idea.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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13 years 8 months ago #33416 by sara.anne
Replied by sara.anne on topic Just plain sick of it
If there was ever a place to receive some sympathy, this is it!! When I had my first BCG I thought "piece of cake". Don't quite feel the same way now. And yes, sometimes I just want to SCREAM.

THIS IS THE PLACE TO SCREAM

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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13 years 8 months ago #33412 by Patricia
Replied by Patricia on topic Just plain sick of it
Vent away.....and maybe try this next time with a lower dose
cat.inist.fr/?aModele=afficheN&cpsidt=15376024
pat

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