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10 years 6 months ago #29082 by Patricia
Bend at the knees Rudy to pick anything up for at least 6 weeks........don't put a strain on that incision.
moma pat
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10 years 6 months ago #29081 by rudyskier
:) Lee thanks for the info. I am aware of the mucous as an ongoing part of life now. The amount of changes each day right now are truly noticeable. Today so far leakage is almost minimal, even though I went out for a 15 minute walk. I can not only get out of the chair but am able to bend over and pick stuff up off the floor with no problem.

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10 years 6 months ago #29077 by LeeH
For me, water works best to dilute everything. I can end up with pretty clear urine. I hope they told you the mucous is a permanent addition to your new reality. It will reduce somewhat over time but it won't go away. I also noticed that after a day of eating and drinking all the crap I have it seems to increase the mucous.

Also, I have gotten to the point where I can go for about 4 hours or longer without having to void. Leaking is so little at this point I will sometimes use it as a marker of when I should go. At this point it is always controllable though so no worries.

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10 years 6 months ago #29071 by rudyskier
;) Lee thanks for the info. Today there was some improvement but I also noticed a really large quantity of mucous discharge today which I had not had that much in the past few days. I seemed to be easily able to clear it by pushing hard. I am trying to drink more today including 16oz of cranberry juice.

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10 years 6 months ago #29054 by LeeH

Generally, that issue will subside over time. I found that it is better in the morning but the muscle gets a little weaker by late afternoon and evening. However at this point (20 months) I only use a very light pad during the day. I was only able to find them on the internet.

I did have that specific issue early on but as it got better, I also had some issues with mucus blockage. I was generally able resolve that by picking up something really heavy (a box of granite tiles worked for me) and that cleared that out pretty well. Involved the same muscles as getting up from a chair, I guess.

Watch out for any developing difficulty in urinating as time goes on. It could be from some scarring closing the opening, which will contribute to a mucus blockage issue. I had mine first cleared out with a laser late last year. Will probably go for a tuneup on that in the spring.

Your uro visits should include some tests of both volume and rate to get ahead of any retention issue creeping up on you. My last one showed a reduced rate although I was able to fully empty my bladder.

The most frustrating thing for me has been how slow some of the progress is, but if I look back a few months I can see the progress. As long as I can continue to see progress, I'm ok with the whole process.

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10 years 6 months ago #29051 by mmc

Took me around 4 to 6 weeks. So, for you that probably will equate to 6 days or so! :)

Yes, patience is the key. You can't hold the world record in ALL categories my friend!


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...
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