Maintenance BCG

15 years 7 months ago #21247 by drosenberg
Replied by drosenberg on topic Maintenance BCG
Rosemary wrote:
So, it sounds as though my uro has some basis for his assertion that there is some controversy regarding the efficacy of maintenance BCG. Or am I reading too much into this discussion?

Don

Please Log in or Create an account to join the conversation.

15 years 7 months ago #21246 by orpheus
Replied by orpheus on topic Maintenance BCG
"Ultimate recurrence"could mean that you will die of cancer at an advanced age. Other than the fear of death which is a human trait, the present inability of doctors to "predict" the progression of BC is a fear that is not irrational. We fear the worst.

Please Log in or Create an account to join the conversation.

15 years 7 months ago - 15 years 7 months ago #21242 by Rosemary
Replied by Rosemary on topic Maintenance BCG
I personally didn't think that I was reading something into this when he puts it this way...

"BCG may not be a panacea for stage T1 disease in the long term"

...and then goes further to say...

"Progression at sanctuary sites, ultimate recurrence and progression with time"

Yikes!!

I do think that this statement from Dr. Herr is proof that there is some controversy between the opinions of top bladder cancer specialists.

Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

Please Log in or Create an account to join the conversation.

15 years 7 months ago #21241 by Alan
Replied by Alan on topic Maintenance BCG
Good point. Gotta ask after seeing the wonderrful ballerina so many times? Daughter/grandaughter/or at a younger age?

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

15 years 7 months ago #21240 by Patricia
Replied by Patricia on topic Maintenance BCG
I think the key words are rapid recurrence and depth of penetration which as we all have seen is often understaged.......Don't read into it what isn't there.
For some strange reason we'll all chop off a breast, take out a kidney or whatever.. but we hang onto our bladder like its made of gold. Hey...so did i...I was the biggest chicken of all time:S
Pat

Please Log in or Create an account to join the conversation.

15 years 7 months ago #21239 by Alan
Replied by Alan on topic Maintenance BCG
I tried to read a lot of abstracts that were free from ASCO and Journal Of Urology. After BCG, from what I read there is a fairly good statistical # of no more recurrences. I am sure there were a lot of variables. Type of tumor, grade, size & things we can quantify. It is something we have to live with and be prepared to take other steps if need be.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne