Dear Wendy,
I am so happy we are back online with the forum as I tried to check the other couple of evenings and I had access to everything except the forum. It just made me realize how much support I gain from this forum. Two nights down felt like 2 weeks down...glad you just changed servers
With regard to adjuvant chemo in Holland it is indeed also published in information folders in the oncolgy waiting rooms that it is offered as a treatment for cancer.
My oncologist at the erasmus centrum in Rotterdam refused to offer the treatment as he had no clear evidence to prove it would give me a better chance. Which in a way is true as the trials are still running in Europe and he offered a few times if I wanted to participate and I declined.
Even the oncology board at the hospital refused to offer chemo. I thought also that maybe they assume my operation was a curative procedure because they removed everything. When I questioned my oncologist about that he said no and that he was suprised that on my last CT scan I did not have a spread of disease due to the 17 positive nodes....
Wendy I am so happy I found a great lady Oncologist in Gent in Belgium and my chemo is being offered at my local medical center. Her advise to me was that with my diagnosis I had a 20% chance of being here in 5 years time so I felt the more agressive path was for me... all things considered.
I started the chemo Tuesday this week and I had the Gemcitabine in out patients for 2 hours and thankfully had no reaction or side effects....although I am sure it is busy inside of me.
Wednesday this week I checked in for one night on the oncolgy ward and had the Cisplatinum. It started at 10:00 and finished at 10:00 today when I was released to come home. The Cisplatinum was delivered over 3 hours and I had all the other stuff before and after the chemo. Sickness meds Emend 80mg was offered through the IV along with 6mg Dexamethason and repeated at the end also. Also lots and lots of IV fluid to flush out my system.
Luckilly and thankfully I have had no side effects or reaction to the chemo...I think the other meds helped to keep the yucky feelings away. I have to take the meds mentioned above for two more days in tablet form.
I did however have a busy time walking to the loo every 30 minutes to empty my new bladder as capacity is 350ml and then the pain starts if I do not void. This kept me up all night and I had a few accidents in my sanitary pads. As the chemo is a progressive treatment and side effects may increase I will ask for a catheter next time so I can sleep the night away.
I do feel tired but I put that down to my 30 minute cat naps all night long and a snoring neighbour in the other bed
Off to bed for a few hours now.....
Kind Regards
Leigh