Living with a Neobladder, please share your story.

2 years 7 months ago #56459 by pete172
Do you continue to do the exercises or is there a point or time that you can stop?

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2 years 7 months ago #56460 by falcon
I really stopped once I became good at it. Just using the muscles for normal control seemed to be enough. But that doesn’t mean it wouldn’t be a good idea to continue do some excercises regularly. We are all a bit different.

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2 years 7 months ago #56462 by pete172
I just don't know. It's been 14 months and I just can't get control.

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2 years 7 months ago #56463 by falcon
Don't know what to suggest, that is a while. Have you tried urinating and trying to stop start over and over in mid flow. That is the one that got me in control. Its about feedback to your muscles. I also worked my sphincter muscles all the time to begin with - sitting at traffic lights, watching tv ....

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2 years 7 months ago #56464 by pete172
thanks, I'll try that. doc is suggesting a type of mechanical sphincter. i'm holding off on that surgery.

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2 years 7 months ago #56465 by falcon
Good luck. I don't blame you for holding off on more surgery. Back when I had it done it was far from routine an took over 12 hours. They have slickened up a lot, but RC is still major surgery.
The following user(s) said Thank You: pete172

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