OK its my turn to get advise...arrrgh

Pat, Very, very good questions! I hope someone here can respond to them. It would make me very edgy to go through that procedure without having answers to those questions. And I suspect that dear Hal is just doing the best he can given the situation...glad you like the doctor but I think for your own peace of mind we need those questions answered...sure hope things get figured out soon. Hugs, Melodie

I think anyone who has had cystectomy with formation of a pouch and the loss of so much intestine has some form of IBS occasionally...its the nature of the beast.
But i do have a question...anyone have a colonoscopy after reconstruction? Any problems? What about all those staples in there...any chance he could puncture my Indiana?....What about the pouch? I know the test is only about 20 mins or so but what if my pouch fills up and i'm out cold for some reason...should a stoma nurse be available? Some of my more stupid questions! Anyone got an answer? Since Hal is still acting like a big baby and deciding to wet the bed every night and spewing mucus and in general being very contrary...my entire routine has been thrown off. BAD HAL!
Pat

Sounds like IBS to me. When they do every test imaginable and can't find anything, then you get the diagnosis of IBS. I've experienced that same pain you described for years now. Every test is normal. IBS. Not much they can do for that except prescribe more fiber. Hope you don't have IBS but something they can "fix"!

Pat,

If the pain moved along like that, I tend to think it was not really a partial blockages. I don't think they move like that. At least mine doesn't. The pain is focussed, in waves, and in the very spot my ileus was stapled back together. Once it starts to clear, the pain gets less, stays in waves, and eventually goes away. No diareah or constipation associated with it. During the full blockage, I have no actual bowel movements but once it clears, things return to normal.


Mike

Just saw my new gastroenterologist...i liked him. He's listed as one of the Top gastro's in the city.....but then so was my husbands cardiologist and that didn't work out too well. Anyway...he said a partial blockage should show up but doesn't always....ok thats really definitive.......but since i'm passing something it could mean about anything. At first he thought infection but then as i told him how the pain had progressed from lower to mid abdomen and now diarhea he changed his mind.....SO....colonoscopy being set up to see if its blood supply, polyps, or just a mean old colon. In the meantime "Hal" has reverted to being a colon again...talk about bi-polar disease....really. If my regualar colon has diarhea Hal thinks its his duty to produce tons of mucus and block my catheter. I guess its time for a little talk.
Talked to the radiologist tech on duty at the hospital about the side effects of Isovue-370 and he said in 30 yrs of being a tech he never heard of them? I offered to send him the data sheet...he wasn't impressed.
So now i have to see my internist and figure out what to do about my stiff neck and pain in the back of my head or not........
Patricia..the doctors nightmare!