Wife Had cystectomy yesterday advice please

17 years 2 months ago #1215 by rentanag
Replied by rentanag on topic Wife Had cystectomy yesterday advice please
Steve,

I wish I had information I could share, but as the women who've already posted I too have not had chemo and have no information regarding it.  Hopefully someone who does have that info will read it (your post above) soon and be able to shed some light on the subject for you.
Please send my greetings to Claire, and tell her we're all pulling for a good solid recovery without any more problems (anesthesia & change in procedure), and we wish that for your sake as well.  Just being there to lend your shoulder when she needs it or to offer your arm to help her ambulate in the halls, those are very important things and she's so lucky to have you there with her.

Lou

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17 years 2 months ago #1214 by Mike
Thanks so much for the updates regarding Claire. I'm afraid that I am not sufficiently knowledgeable to be able to make suggestions re chemo or the upcoming consultation. Please do let her know that we are asking about her and sending her our best. And do take care of yourself also.

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17 years 2 months ago #1213 by Angela
Replied by Angela on topic Wife Had cystectomy yesterday advice please
Steve-

Thanks for updating us on Claire's recovery. I hope you are getting plenty of rest and taking care of yourself also.

I have been fortunate to not have to undergo chemo, so am unable to offer much advice in that regard. I wanted to reply however to let you know I am thinking of you and Claire and lifting you up in thoughts and prayers.

Angela

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17 years 2 months ago #1212 by clur
Hi
I need advice again.First of all thanks for all you messages of support and kindness.Claires doing well she finally woke up properly on Saturday and whilst in a lot of discomfort and still quite woozy is Ok.
We got the pathological diagnosis this morning and its a bit disappointing the top line is T3a N0 M0.She had three tumours and one area of microscopic change within her bladder.Two of the tumours had invaded deeper into the muscle layer and one of those also showed microscopic invasion of the fatty tissue between the posterior bladder wall and the anterior vaginal wall.The cells showed lack of architectural structure and demarcation and were classified grade 3 as expected.
The good news is there was no invasion of either lymph nodes or uterus,vagina,fallopian tubes and ovaries.The bad news is that because of the escape from the bladder her consultant is recomending a course of chemotherapy.He is taking her path results to the departmental meeting on Friday and will come up with treatment recomendations from that.Basically I just want to know what questions to ask what further tests should be taking place etc.They seem very on the ball and we are happy with the care Claire has recieved but it doesnt hurt to be informed.
Thanks Steve

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17 years 3 months ago #1210 by Knut
I have sent a couple of messages to Clair prior to her surgery, and despite her reaction to the anestesia, you should be very happy that the results are looking so good. It will take some time to adjust to the bag etc., and the recovery will take some time. Please say hello to her from me, and hopefully we will hear from you again soon.
Sincerly,
Knut

Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.

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17 years 3 months ago #1205 by Mike
I am so anxious to hear how Claire is doing. Send her our love, please.

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