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Wife DX with T2 Micropapillary Cancer…
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She should start accelerating slowly on the upward trail. Give it another 30-60 days and it will become a distant albeit no fun experience! Happy for both of you.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Day 7 and 8: Summary
1. Her blood pressure now does not drop precipitously when stands.
2. She was able to walk around the nurses station (150 steps) today with help. That is 147 steps more than she has walked the first 7 days combined since surgery.
3. Continued with her first solid food diet since surgery.
4. Bowels continue to improve.
5. Gets extremely tired quickly. The steps today absolutely exhausted her.
6. Optimistic that tomorrow will show continue improvement.Will continue to post progress every few days.
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You are going the right direction! Thanks for the update!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Day 5 and 6 done: Summary:
1. Nausea subsided.
2. Removed the nasogastric tube.
3. Began a limited liquid diet.
4. Bowels starting to wake up.
5. Still unable to stand because of dip in blood pressure.
6. Still a lot of pain in stomach area, but improving.
7. Voice and color returned and seems in good spirits.
8. Optimistic that tomorrow will show continue improvement.Will continue to post progress every few days.
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Day 3 and 4 are done. Summary:
1. Due to vomiting my wife received a nasogastric tube. She has had it for two days. No food or liquid during this time, feeding intravenously. Once she is able to get bowels moving they will remove it.
2. Day 3 she was very tired and slept on and off most of the day.
3. Day 4 much improved. Very alert and stayed awake nearly the entire day.
4. They have been unable to have her stand because her blood pressure drops 40 points when she stands because of the dehydration, etc. They expect that tomorrow she will be able to walk some and then things should be on the upswing.Will post later to continue to document the process for future readers.
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JamesF,
Hopefully, the worst is behind you both and in 2-3 months simply a distant memory!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
JamesF,
Always hard to have a loved one recovering, but it seems she is doing well from your description. Not a lot of fun, but there is promise for the better days ahead.
Best to you both
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021 -
Just completed day 2 since RC summary:
1. They had her sit in a chair for about an hour.
2. Was not able to to walk because every time she stands her blood pressure drops significantly.
3. Has not used restroom yet.
4. She was able to drink some and had a tiny bit of white toast.
5. Nauseated today with moderate pain. Threw up once in evening.
6. Received training with attaching bag today.
7. Drain still pretty red, but lightening up some.Hopefully tomorrow will show improvement.
Will report back as things progress.
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JamesF,
Thanks for the updates. We all gain knowledge from each and every post and glad that scare is past. Especially for us that have been under the knife, the anesthesiologist is super important now that your wife appears to have a sensitivity to some of those drugs. Only upward and onward from here we trust!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Eight hour RC completed today. Everything went as smooth as possible during surgery. The doctor stated he did not see any sign of the cancer outside of the bladder and expects the pathology will corroborate. Since it is plasmacytoid we will wait anxiously on the pathology, but for now will be positive and work on recovery.
I should mention there was one small hiccup after surgery. While in PACU she had been given a pain and nausea cocktail that knocked her out and then taken to her room. When she reached her room she could not be revived. Her breathing was down to four breaths a minute. A lot of commotion and a tense half an hour later they were able to revive her with NARCAN. Apparently she is very sensitive to the aforementioned cocktail. Pretty scary.
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JamesF
Wishing the two of you a smooth recovery and adjustment to the new normal.
Questions or sharing of experiences are always welcome here.Best
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021 -
Update.
All preliminaries done. RC will be later this week. Surgery is expected to be 10-12 hours, with possibly a week stay in hospital. Will report back after surgery as I am sure I will have questions.
Thanks
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JamesF
Had hoped for you the chemo would do more; likely it has acted to help contain the cancer and reduce the risk of spread as a pre RC treatment. The micropapillary variety requires the experience of a major place such as MDA.
Wishing you and your wife well,
Best
Jack R
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021 -
Update.
My wife had another cystoscopy and the urologist has determined that she is still a candidate for a RC. It is scheduled in several weeks.
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Thanks for the update. MD Anderson is still the best for beating this disease.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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