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Wife DX with T2 Micropapillary Cancer…
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Progress! James, be assured you are helping everyone that passes by the site. M. D. Anderson is an amazing hospital and the staff is world class. Thanks. While I have not had to use them, living in New Braunfels they are my backup.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
I figured I would update for future reference for others.
To review, my wife was diagnosed with muscle invasive bladder cancer stage T2a. The pathology showed that it was the rare variant plasmacytoid. After 4 rounds of chemotherapy (gem/cis) the cancer was unresponsive and chemotherapy was cut short. An RC was performed at M.D. Anderson in January. The pathology showed no lymph node involvement and no positive margins, but the cancer was upstaged to 3a.
Fast forward to 3 1/2 months after surgery, with the exception of a rash around the stoma everything has been going well. There was a lot of constipation, but it has improved as well.
The 3 month checkup (CT Scan/blood work) showed that the cancer has not returned.
Will have the next checkup at the 6 month mark, will update then.
Thanks,
James
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Incredible diary. I am sure yu have helped many others. Thanks. Most importantly, I am glad the wife is getting better!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Exactly 60 days since RC.
1. Lot of progress. No complications. Just gets tired very easily still. Has not returned to work because she is a teacher and would just be too much right now.
2. Changing bag every 3-4 days. I am assisting her with this. Will be a big step when she can do this by herself.
3. CT Scan and oncology checkup moved back because of Corona. Oncologist thought okay since surgery went well.
4. Even though she had the highly aggressive plasmacytoid variant we are very helpful as are her doctors that at stage 3a very good chance now.
4. Will wait to post until after CT Scan or if something out of the ordinary occurs. Thanks to everyone and will continue to check in.Hope this helps others.
Thanks,
James
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Exactly 52 days since RC.
1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, getting more energy all the time.
4. Did have first leakage today. Switching back to coloplast.
5. Met with urologist that did the surgery for followup. Everything looked good, final stage was 3a with negative margins and clean lymph nodes.
6. First CT Scan and oncologist meeting since surgery coming up in a few weeks, then every 3 months for the foreseeable future.
7. Everything is looking up!I will post after her first CT Scan later in the month.
Hope this helps others.
Thanks,
James
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++++++++++++++++++++++++++++++++++++!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Exactly 42 days since RC.
1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, but still pretty tired a lot of the time.
4. Had follow up with Wound/Ostomy, everything looking good. Got some bags ordered from Hollister that
are easier to connect to the night bag.
5. She was able to get out of the bathtub by herself for the first time this evening.
6. Everything is looking up, slowly but surely. Urology meeting Monday.I will continue to post weekly updates through her first CT Scan late in the month.just to continue documenting her process for others.
Hope this helps others.
Thanks,
James
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James,
This helps MANY people! Thanks for posting. It is an encouragement and glad the wife’s progress is going forward. From the many that have had major surgeries her recuperation should slowly build momentum.
Regards!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Been a little more than a week since last post, 34 days since surgery.
1. All of her incisions just about healed.
2. Stoma healing very well.
3. Constipation on and off (taking colaise and eating prunes).
4. Getting around a lot better, but still fatigued super easy.
5. Has not left the house yet as gets tired very easily, but is getting stronger.
6. No unexpected situations.
7. Wound ostomy check up appointment on Monday.
8. Urologist appointment a week after that.I will continue to post weekly updates from here on out just to continue documenting her process for others.
Hope this helps others.
Thanks,
James
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JamesF,
Thanks for posting. Glad she is making progress. All posts are helping someone!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Been a little more than a week since last post, 26 days since surgery.
1. All of her incisions from the surgery healing very well.
2. Bad constipation (taking colaise and eating prunes).
3. Getting around a little more.
4. Has gotten used to daily shots and bag changing.
5. No unexpected situations.
6. First appointment since surgery is three weeks away.I will continue to post weekly updates from here on out just to continue documenting her process for others.
Hope this helps others.
Thanks,
James
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Was going to wait a week to update, but thought I would now since got a call from doctor with pathology results.
All lymph nodes were negative. The cancer progressed through the muscle wall and invaded the fatty layer, but appears to have been contained there. Plan is to see urologist in a month and then oncologist that will follow up with three month scans.
As far as recuperation, it has been up and down. Lot of pain still, but moving around better with a walker. No more vomiting, but still difficulties with restroom.
I will post weekly updates from here on out just to continue documenting the process for others.
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James F & Wife,
Thank you for sharing the story of your.
So glad to hear that you are beginning to get back to your new normal.Best,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021 -
Day 11 and 12 Summary
1. Day 11 had lot of walking and much progress. Still very tired though.
2. Day 12 home finally!
3. She is able to get herself out of bed and walk to the bathroom with a walker.
4. Still very sore.
5. Her appetite has returned and hopefully some good progress will occur now.Follow up visit will be in six weeks.
I will post weekly updates from here on out just to continue documenting process for others.
Thanks,
James
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Day 9 and 10 Summary
1. Day 9 was pretty much a setback. As she had a lot of activity on Day 8 she really could not get out of bed too much because was exhausted. In fact she slept for the better part of the day. Also started vomiting at night after taking large pill.
2. Day 10 showed some improvement. She was able to walk with a walker to the restroom. She needed help getting up but then could walk.
3. Day 10 very tired from getting up to go to the restroom about 10 times during the day so was not able to walk.
4. Vomited when taking a pill again this evening.
5. Received magnesium to help with vitals.
6. Only eating maybe an oz of food at most and maybe 4 oz of liquid during day.
7. Looking forward to maybe leaving hospital later in the week if shows improvement.
8. Optimistic that tomorrow will show improvement.Will continue to post progress every few days.
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