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Twisted intestine partial blockage
My husband is in the hospital with a twisted intestine. They say it is a result of scar tissue from his Radical cystectomy surgery in March 2014. He was experiencing some abdominal pain which was not to much concern, but when the vomiting started they rushed him into the hospital. I would like to know if anyone has ever had this happen to them and if so,how was it resolved. They don’t want to do surgery so they are just keeping him on IV and no food for a couple of days.
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16 Replies
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He had the surgery, but apparently since the surgery something happened to his kidneys so he had additional surgery to have Nephrostomy tubes for both kidneys so they can drain properly. We just have to wait a few days and hopefully they can internalize these and put stents in the ilia conduit into his Urostomy bag.
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Nancyhlm,
just checking in to see how you are doing, and how the surgery went. Thinking of you and your husband and hoping for improvement each day!Patti
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I am sorry that we have not been more help to you here. But as Catherine said I do not know of anyone here that has had exactly the same situation you and your husband are facing. You did not say if they are going to do an ostomy but if they are you might be able to get more information on an ostomy support group they can be found by doing a search here is an active one that I found.
https://www.inspire.com/groups/ostomy/
We do have experience with chemo as a group and recovering postop. And we do know what it feels like facing the unknown as Cat said. Know we are here if you need us and please keep us updated.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society -
Just wanted to send good wishes for your husband tomorrow and I hope that his surgery can take care of this situation. I know he has already been through a lot, and so have you. His case is more complicated than what most of us have experienced, so that is why you haven’t gotten a lot of specific comments.
But know that we all stand with you because we DO know what it’s like to stare uncertainty in the face, and how scary that feels. Blessings to you both… please let us know how things go so we can continue to cheer you on.
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
My husband is scheduled to have surgery tomorrow to have the blockage dealt with. They mentioned a bowel resection where they do it so it kinda forms a “Y” and the infected portion will stay. If anyone has had something like this I would love to talk to them and get some support. About 3-4 weeks after he will have chemo to shrink the tumor mass and hopefully this will take care of his condition. I need to talk to someone who has had similar situation .
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Hello Nancy… I am so sorry that you have received this devastating news. This is where a meeting with an oncologist and your urologist will have to determine the most effective way to treat this new development. Have they suggested further surgery, or perhaps to do chemo first? Do you feel that a second opinion is in order if you have not had an outside referral? It is always so hard to know what to do when faced with an unexpected scary turn like this.
I wish had more to offer but I’ve never dealt with your particular situation. I can only send wishes that you have the best possible outcome with whatever path you choose. There are others here who have gone through a chemo regimen. I hope one of them can add to this thread.
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
We received our biopsy report basically stating the bladder cancer has spread. They say it is positive for CK 7, and. P63 and negative for CK 20 . They say it is similar to the previous cancer diagnoses. Not sure what route we will go with treatment but we are thinking of chemotherapy. Fred is still in hospital because they found he has a UTI and they put him on a new antibiotic so we will see how that goes. We are so confused anyone out there who can shed some light on this situation would be greatly appreciated. We don’t know which road to turn to and any thoughts on this would help us make the decision.
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I am a lymphoma patient and I have some mass in my bladder so I am checking this forum too. My first thought was that it might be a lymphoma. Please let us know the biopsy result.
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Hi,
Just thinking that often after surgery, patients do not cough and deep breathe as they normally would. I would be sure he is taking several deep breaths per hour, and placing a small blanket or pillow against his abdomen while he coughs. Quite often it can be respiratory related because of the anesthesia and pain medication. Compressing the blanket at the operative site really helps when coughing and deep breathing.
You most likely know this from his hospital stay, but it’s worth a try! Definitely check for a UTI also. Good luck! -
My husband and I are completely puzzled. He was doing good then the surgery on Tuesday to remove the blockage, but they found a mass and biopsied it. We still have no results yet, but he has been plagued with fevers. They did a Doppler exam to see if it was DVT but negative on that, blood cultures came back negative, they are now thinking along the lines of a UTI. Is this something that can cause fevers and is it common with a Urostomy ? They Are just as puzzled as we are. If anyone has any suggestions I will take whatever ideas anyone may have.
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Thinking of your husband and yourself…sending positive thoughts your way!
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Nancy, I am so sorry you and your husband are having to go through this. As to why they didn’t catch this in the scans that where done I can not tell you I can only theorize. We tend to think that an X-ray or scans sees all but soft tissue will often times show that there is something there but visual inspection is the only way to tell exactly what it is.
Between now and Friday you and your husband need to consider making a list of questions. For me quality of life and pain management would be very important. We have not talked about where you are located but do you think a second opinion at a major cancer center is needed, unless that is where you are being seen now?
Nancy we may not have all your answers here but we are here to listen when you need us.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society -
My husband had surgery on Tuesday and they discovered a mass IN the intestine which was massive. I am puzzled over how this happened. It never showed on an ex ray or a CAT Scan all tests done came up negative. He had his six month check up which was Negative. How can this be? They said the tumor was massive and they could not remove it all. There goal was to try to clear the blockage as much as possible but the surgeon said it was stage 4 and when he told my husband what he did he never made mention of Stage 4 to him. They want to wait until the biopsy comes back on Friday or Saturday. Any input would be appreciated.
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Nancy, I am very sorry this has to be terrible not knowing what is going on. The reason you are not getting many replies is that we do not see a lot of this here. It sometimes happens after an RC but it has been a while since someone here had this happen. We really can not answer your question because we are not medical professionals. Everyones situation is unique and there are many facts that would factor in, such as age, general health or other complicating conditions. Your health care professionals are the only ones who can help you find the answers you are seeking and if they are taking a wait and see stance they may not have the answers you seek yet.
What we do offer here is a caring ear and thoughts we have gained through experience. Have you talked to your husbands doctors and told them that you need more information than you have been given? What are they saying? Keep us updated and we will be here for you.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society -
He was doing good then all of a sudden his started with the bloating again. I am at a loss as to what to think. Any input from anybody would help.
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