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  • New to Bladder Cancer, Awaiting Results

    Posted by troyryans on September 15, 2019 at 9:46 pm

    I am new to this forum and am hoping someone may have experienced some of the same bladder symptoms and test results I am currently going through.

    My history is as follows:

    13 years ago diagnosed with atypical ductal hyperplasia in right breast, underwent two lumpectomies to remove the precancerous cells.
    Cells were determined to be estrogen driven, ER+ 99%
    Tested negative for BRCA 1 and BRCA 2
    Took 3 years of Tamoxifen to help prevent reoccurrence.
    10 years ago had a preventative total hysterectomy including ovaries to reduce estrogen production
    2017 diagnosed with Invasive Ductal Carcinoma breast cancer, both breasts removed
    Tested positive for CHEK2 hereditary gene marker
    Now on 10 year cycle of Letrozole to help prevent reoccurrence
    Started experiencing slight “menstrual” cramping a year ago, testing did not pick up any issues
    Return of “night sweats”, same as what I experienced prior to breast cancer diagnosis
    Passed kidney stone 8 months ago, extreme pain
    Developed pneumonia 2.5 months ago, two rounds of antibiotic, still have cough
    Urine tests for annual oncology appointment show microscopic blood, cramping occurs every day
    CT does not show any bladder issues, 2 tiny kidney stones in left kidney
    Cystoscopic pathology report from urine is suspicious for low grade lesion, degenerative urothelial cells, crystals, bacteria, mild acute inflammation.My history is as follows –

    I am scheduled for a scope Tuesday to see if I am positive for cancer. My father and grandfather both passed from bladder cancer, and a long line of other relatives with cancer deaths. The cramping and excessive sweating is not good. My appetite is not good, I have only lost about 5 pounds in the last month. I wake on average 6-7 times a night to urinate, and sleep is fleeting.

    The question is whether there could still be cancer if a CT and ultrasound doesn’t pick up anything? Has anyone had that happen in their situation?

    Thanking you in advance!

    sara.anne replied 4 years, 9 months ago 2 Members · 1 Reply
  • 1 Reply
  • sara.anne

    Member
    September 15, 2019 at 10:10 pm

    Wow…you have certainly already paid your cancer dues!

    No one can really predict what the results of your upcoming tests will show. I assume that you are having a TURB (transurethral resection of the bladder) where samples of the bladder are taken for pathology. Only after the results are back from the path lab will a definitive answer be available.

    However, urine cytology tests are notorious for giving false positives.

    We will keep our fingers crossed for you.

    Star Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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