I have not had a cystectomy, but have heard a lot from those who have. For anatomical reasons females seem to have many more problems with neobladders than males, with lots reporting either incontenance or hypercontenance. IF I were considering one I would find a place that does LOTS of neobladders in women with a high success rate.
What does her urologist suggest? I think that I would seriously consider an Indiana pouch if I were facing this. Many urologists are really only trained in the external pouch surgery which is definitely the “easiest. “. You want a surgeon whio has had lots of experience in the diversion you prefer.
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Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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