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Immunotherapy
I start immunotherapy on the 18th but I’ll let you all know how it goes.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC. -
57 Replies
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lotech,
Great to hear that the immunotherapy is working !
Sorry to hear about the kidney, but the good news is you only need one. I lost one years ago, and when the bladder cancer hit there was concern about my making it through chemo with just one kidney. I made it.When cancer showed up in my one kidney, it became the most important thing. The kidney cancer seems to be gone, but the bladder cancer remains. I don’t want to be without any kidneys; not looking forward dialysis.
Hang in there – it seems a rough path for you, but it is good to hear that you are still clear of the bladder cancer. Keep up the good work, praying for you and yours.
Best
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021 -
Thanks for the update. Sounds like you are getting things under control.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Im back! could not save ureteur, so for neph bag removal I had to lose a kidney. sounds bad but the external bag was an issue to me. I hated it. might regret that in the future but for now its great! still getting immunotherapy and no sign of disease!!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC. -
Alan
One more surgery my friend to try and fix a ureteur. next month! so much has happend All of you on this site have inspired me and kept me going! Know that I think of you often!! and Thank You!!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC. -
LoTech,
Don’t be a stranger. You inspire everyone. Glad you are making progress!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Iotech35, always go to hear from you, and happy you are doing well. I’m in 4 months and 8 infusions. my marker numbers are going down, and pet showing less. I still have some fatigue and mild nausea, but thats easy to deal with. we are blessed. stay well. God Bless.
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Truly wonderful news . You are a real inspiration
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator -
I have been on KEYTRUDA for a year and a half now and am happy to day as of today I have no evidence of disease! In the beginning I had extreme joint pain! but tylenol and oxy helped with that. Now a little sore sometimes but nothing like befire. I think your body adjusys. I wish you well my friend and pray the discomfort goes quickly!!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC. -
Iotec35, Good Morning, Keytruda Infusion number 6 coming up, and pet scan shows good results. I am starting to feel some fatigue and nausea. The nausea seems to be more noticeable in the morning, and after a drink and something to eat, it seems to subside. My concern is I think it’s becoming more obvious more noticeable. I don’t know if the Keytruda builds up in our system and this is a normal side affect? I’ll ask Wednesday when I go in, but I was wondering if you are experiencing any side affects? I truly pray you’re doing well, God Bless
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Iotec35 thank you. and yes easier then chemo and a lot less time, praying for all, God Bless
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Pete172
My next treatment will be number 18, its way better than chemo and my results are great! it takes 3-4 treatments before you see results for some longer. I hope to hear more on your keytruda journey!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC. -
hello everyone, just started on keytruda 6 weeks ago. this week was treatment #2, so fare all good.
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Wonderful to hear your good news!!! Happy 2019.
Anita
Forum Moderator
Caregiver -
Thanks LoTech! I was missing you. Glad for the good updates.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
That is just the kind of HAPPY New Year message I like to see!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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