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    I’m BACK!!

    Posted by sara.anne on May 27, 2017 at 5:53 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    And bet you didn’t even notice I was gone! Returned two weeks ago from a month-long fabulous trip to Central Asia…spent time in Kyrgyzstan,Kazakhstan, Uzbekistan, Turkmenistan, and Tajikistan. It really is another world where they still wear their national dress daily, no supermarkets outside the major cities and few even there (shopping is done at the bazaars) and lots of friendly people.

    It has taken me almost two weeks to recover! But now I am ready for the next adventure.

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
    Inspry replied 6 years, 8 months ago 6 Members · 7 Replies
  • 7 Replies

  • Inspry

    Administrator
    November 9, 2017 at 5:16 pm

    Welcome back Sara!

    Test Signature

  • Hannah01

    Member
    June 1, 2017 at 7:57 am

    Wow Sara Anne, your absence is surely noted and you got some amazing destinations choices.

  • sara.anne

    Member
    May 30, 2017 at 3:30 pm

    The long air flights are a problem. If you don’t build in a recovery day in your itinerary, you start out really tired.

    Planning a trip to Papua New Guinea later this summer that starts with a loooooong flight to Sidney. Almost
    having second thoughts!

    SA

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

  • Alan

    Member
    May 30, 2017 at 2:48 pm

    Good to have you back! Sounds like something I would like to do except my wife hates those long air days-me to. Must have been a full day each way!

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

  • jack-r

    Member
    May 29, 2017 at 3:15 am

    Welcome back Sara Anne,

    Your absence was noted, but I figured it was part of a “Beat BC and See the World” event.

    Great way to show that there is life after a diagnosis of BC.

    Best,
    Jack

    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021

  • sara.anne

    Member
    May 28, 2017 at 7:51 pm

    Absolutely!! Practically everyplace we went had something to do with the Silk Road! I remember how in the Eastern US every place has a marker that “George Washington slept here.” Well, in Central Asia everyplace was visited by Genghis Khan, and he was responsible for thousands of deaths in each place….

    The Chinese are building a new “Silk Road” across many of the countries to be able to move their exports over land as well as the already-established sea routes. Tajikistan, in particular, has lovely new (toll) highways built by the
    Chinese. Uzbekistan does NOT….they do not want the political entanglements that accompany such foreign “aid.”
    Interesting politics

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

  • dtat60

    Member
    May 27, 2017 at 11:17 pm

    I did notice your absence but glad to see you back! It sounds like quite an adventure. Isn’t that the land of the “Silk Road” and “Genghis Khan”. A once in a lifetime experience. Welcome back – you are always missed.

    Peace and Love,
    Dave

    08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG

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