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digestive trac
:( How are you folks with post op digestion, I am 21 months post op and so oftin have diarea after eating. I try to pin down what it is but so many things seem to give me trouble, mostly breakfast stuff, excluding oatmeal and bananas. This is my last issue to over come. I expected it for maybe six months after RC, but sure hoped by now it would improve more, Of coarse it is better than the first six months. By the way I have a neo bladder and it is working great. Thanks in advance for any help. Don
Hanging in there! -
18 Replies
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FWIW, I get up 2 or 3 times night every 3-4 hours. This is much better than before the surgery when I had to pee all the time day and night! One of the positive unintended consequences of the surgery is that I actually go less often and do not have the discomfort that I lived with before the neo.
One more of life’s mysteries.
Mike
Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23 -
Jim Thanks for the info. I do not know what kind of Nerve saving they did on me, I never heard that terminolgy before. I can tell you not enough to get er done yet, But I am 10 years older than you. But I was very active pryer to RC. Hope the cathing works for you. I do piss real good have located the rite muscles to get er done. DonDon
Hanging in there! -
Lee, I’m about 5 months since surgery. I am 98% dry during the day. Like you said, nights are a different story. If a wanted to get up, and go every three hours, I guess my nights would be dry.
So i get up at least once (4-5 hours after going to bed), and my underwear isn’t too heavy. If I get up twice, it is very light.
I have not slept through the night yet, but can imagine it wouldn’t be too pretty.Don, I have scare tissure issues with the Urethra to bladder connection. I cath to encourage the scare tissue to grow out, instead of in. So far it is working. Still have a pretty good stream. Capsule Sparing is were the remove the inside, and leave the outside. It’s like taking the inside of an orange, and leaving the part you peel. Thus leaving all the nerves, etc.
Hope this helps
Jim
Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan -
Odd that someone would tell you the mucous would be gone Jim. The Neo is a piece of intestine that naturally and routinely produces mucous. That won’t change. I have always been told that is a permanent addition.
By the way, I am about 18 months out on my neo. Ok during the day although I still wear a very light pad for security. At night, I suppose it depends on your definition of continent, but I’m doing ok and still am getting improvement.
LeeH
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WOW both you guys are doing great, Jim I am wondering why you have to cath sometimes and other times you do not have to. I had My RC done robotic but what is capsul prostae I thought we all had to have prostate removed with RC. Maybe I was tolded wrong or maybe this is new? Don
Hanging in there! -
Boy Mike………….2 years out, and still have mucus??? I must have been mislead. Most have told me 6 months to a year, and it would be gone. But I haven’t had any digestive problems. Erections have returned after 4 months. I still have to cath every other day due to scare tissue issues. Should be able to stop that in December. Keep up the good work, Jim
Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan -
Hi all, I’m close to 2 years out of a neobladder and the digestive problems I have is that I have have to go to the bathroom many times a day, maybe 3-5 times.It’s weird that all of us respond slighly differently. I am worried about the B12 problem and plan to have it tested every year or more. My doc doesn’t want to do the more extensive test so I guess I’ll just wait and see for now.
Otherwise, all systems go for me as of now and I’m glad I got the neo. I don’t catheterize and can have sex. The only reminder is the mucos that still comes out when I pee. It keeps me in check and aware of my mortality.
Recently I’ve met 2 men with BC and have recomended this forum as it was a great benefit to me and my wife.
Mike Greenberg
Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23 -
Well they did advocate a conservative approach with it but i just think he should know about it before you do have any symptoms and i further wonder if that mixture could not be contributing to the stones in the bladder??? Its quite a coctail:S
xxoo Pat -
Pat,
I know I’m special but really, 3 out of 146 patients per the article…I’m not THAT special…and it talks about gastrointestinal symptoms but I haven’t had any digestive issues….so I think I am just fine. However, in the interest of science and curiosity, I will take this article to my doctor at next visit and will also present him with some of my finds that I have saved from emptying. Thanks.
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright -
I have an illeal conduit and one year out of surgery. I have never experienced any sort of digestion problems. We recently received some junk mail advertising something to correct bowel problems. There was a list of how your bowels should be actively and mine were great for every question.
Balihigh
female 60
1/08 dx 4 tumors TURB
T1 G3
12 BCG + interferon
5/08 another tumor/TURB
9/08 RC illieal conduit -
A fistula is an abnormal opening between two organs that should not be connected.
Melodie…read this..an Entero-Pouch fistula and tell your doc about it.
http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B7XMT-4HMXJMV-7&_user=10&_rdoc=1&_fmt=&_orig=search&_sort=d&_docanchor=&view=c&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=218e70004328f5015f1c3a5d51a865b1
Pat -
I’ve been told this by another warrior and just glanced at a definition on the Internet…doesn’t sound good…if it means the doctors get to give me another puncture wound…no, thank you, I think I’ll skip it. :ohmy:
As it is I have that concern in regard to stones re-occuring as I’ve been told next time they won’t be able to go thru the stoma. Stones or Fistula, I’m not planning on another procedure unless I’m seeing any signs of discomfort….as it is, I feel fairly good most of the time, inspite of the strange things I find in my urine. Since I use a clear container to catch at home, it sometimes looks like the bottom is covered with sand…which I hope is the stones material breaking loose and leaving the bladder rather than forming stones. :)
Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright -
Pat – what is a fistula?
Gracie
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Well, I am 19 months into my neo and still have diarrhea about once a week. Generally it happens at night about mid evening. I can have a normal movement in the afternoon, the runs in the evening and a normal movement the next day.
Can’t figure out what triggers it. Could be from overeating at a meal?
Well, reassuring that I’m not alone. But I don’t have any odd stuff, other than mucus coming out in my urine.
Lee
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Melodie……take a sample of those greens and seeds into your uro…….that is not normal and i’m sure he thinks you are making it up. Take it in. I fear you may have developed a fistula………Please for me???:unsure: Pat
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