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adenocarcinoma
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Yes, get her out and about while she is feeling good. Even if it is to a park etc…fresh air!
Do you have outdoor restaurants etc? quality time.. -
You may be surprised how much you will learn to up your pay grade. LOL Thanks for asking about my sister. They have stopped her treatment due to inducing seizures and she is on ‘surveillance’. She’s is feeling good for now and still able to get out and do things, although very limited due to Covid. We’ll take that! As we have all learned, every good day is a blessing.
Catherine
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
I will have home health care nurses come and visit him while he has the catheter.
Yes, due to male parts, the catheter positioning is definitely an issue. Above my pay grade. ;-)
We live 1 1/2 hours from Moffitt. 300 miles was a long drive!
How are things going with your sister? She is lucky to have you for support.
carol -
Not to cause concern, I had the catheter a bit longer because the hospital was 300 miles away and they wanted to make sure all would be healed when I returned. They had said expect 3 weeks and my follow-up was a bit past that. I think catheters are more uncomfortable for men. I remember reading here somewhere advice about lubricating the tubing where it goes in to prevent sticking and pulling. And that’s all I know about that.? He will get through this and you will be a big part of that. Stay strong. ?
Catherine
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
Hi, Catherine,
Thank you for your reply.
A partial seemed to be the best option for him…quality vs. quantity of life. Better recovery time, too.
He was told the catheter will be in for at least 2 weeks while the bladder heals. It will be a challenge for him.
After the biopsy, he was complaining about the catheter after 2 days…. ;-) I will be reminding him that he has a bladder vs. the alternative.
My biggest concern with the RC approach was the urinary diversion pouch. He would not have done well mentally or physically.
Thank you again..
~carol -
That is very encouraging news. A partial, although still a serious surgery, is definitely not as difficult a recovery as an RC. I hope you are both relieved to be going forward with this option. I had a catheter for almost a month while my bladder healed. It was an adjustment and an inconvenience, but I was grateful to have it because it also meant I still had my bladder. I wish him the best possible outcome, and I am so sorry you cannot be by his side in the hospital. He is at a great facility and I feel sure he will be well cared for. Please let us know how things go. Thinking of you both…
Catherine
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
Hello,
I took my husband to Moffit this week for a consult with Dr. Wade Sexton. We discussed treatment options.
He has an adenocarcinoma that originated in the bladder. No other major organs are affected based on the
PET scan. From what Sexton said, it is not urachal adenocarcinoma (Hard to hear the conversation on a cellphone)
Sexton will do a partial cystectomy this Thursday. He will also remove surrounding lymph nodes to see if they are cancerous. If they are, the next step is uncertain. No visitors are allowed at Moffit due to COVID, so that makes things tougher on my husband..It is understandable, however.
According to MD Anderson and other online research, this type of tumor does not respond well to chemo/radiation etc.
Hoping for the best, but also being a realist.Be well and safe..
~carol -
Thank you so much. I am praying for clean margins and no lymph node involvement for him I know that is a big order given the tumor size and the invaded muscle.
I have been researching partial cystectomies and the published articles by Dr. Arlene Siefker-Radtke at MD Anderson. She seems to be the expert on Urachal Adenocarcinoma.
There was a recent Phase 2 clinical trial of 5-fluorouracil, leucovorin, gemcitabine and cisplatin for metastacized cases. Unfortunately, the Pase 2 closed at the iend of July 2020 and the results are not available yet.
Best of luck with your sister. I am sure you are giving her comfort.
Are there any clinical trials that could be pertinent to her ovarian cancer?
Thank you again for your thoughts.
Carol -
Carol… thinking of you as you go to your husband’s appointment on Tuesday. Sending wishes for the best possible outcome.
Catherine
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
Catherine,
Thank you for your reply.
My husband’s tumor is 3-4 cm, so I am still hoping for the best.
We go to Moffitt on August 18 to hear treatment options.
I assume they will not know the course of action until the do the surgery.
Be well…
carol -
So sorry to read about your sister! You are a special person! I went through something similar with a sister 6 years ago….no fun and at the same time I feel privileged to have been there for her.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
You’re welcome Alan. A family health situation has kept me away from the forum although I still read the post notifications in my email. My sister has late stage ovarian cancer and my time is now devoted to helping her with all that entails.
Best wishes…
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
Hey, Catherine! Thanks for your quick post. I had asked Sara Anne to check on another thread but, I see you have already been able to respond to CKFUN.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait. -
Hello… I had a partial cystectomy in Feb 2010. My adenocarcinoma was 1.6 cm, so relatively small. It was in just the right spot between the ureters to make the partial possible. They got two clean margins around the tumor site and there was no lymph involvement. There has been no recurrence and this past year my urologist says he is comfortable stopping future monitoring now that it has been 10 years. I was 55 at the time. There have been no bladder issues and I consider myself to be extremely lucky that it was discovered early. Best wishes to you and your husband.
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN -
My husband has a similar story…We are going to Moffitt in FL.
Adenocarcinoma urachal…
Seeing a great urologist at Moffitt Dr. Wade Sexton.
I had assumed this type of cancer was not reponsive to chemo or radiation.
My husband is 76 years old…if he has an RC, he will never be the same mentally. He is old school.
The option of a partiial C with chemo has been discussed.
I would like to have a discussion with patients who had this at and older age and decided on a partial vs. the RC.
My husband wants quality of life.
All opinions welcome…
I have volunteered at the FL Cancer Specialists for over a year. as a patient support person. I understnd cancer and chemo.
Thank you for your replies.
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