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First three month cystoscopy

2 weeks 6 days ago #56279 by ReeRee
Hi Chels,

Just writing to connect as I am similar to you. Young female (33 when diagnosed) with non invasive tumour. Mine was low grade carcinoma removed by TURBT and had chemo in the bladder after surgery. I’ve had one follow up and am due for my second in a couple of weeks.

It’s very odd for young females to get bladder cancer. Every time a doctor sees my notes they ask “how in hell?”

Just wondering your background. I am a smoker, I know that’s the biggest risk factor. Wondering if you drink energy drinks? Like red bull. My mum reckons maybe that’s it?

Female 34 Ta TURBT 01/17/18

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3 weeks 6 days ago #56225 by JIMG4
That's good news! Happy for you!

So good to hear this.

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC

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3 weeks 6 days ago - 3 weeks 6 days ago #56223 by Chels8152
I had my follow up today. Everything went well and my urologist stayed that my bladder looked great! There was some irritation seen but nothing of concern. I won’t need to go back until another three months! Thanks for the replies!

Female 29 with low grade
First cystoscopy 7/27/19
TURBt 8/9/18
Diagnosed 8/11/18

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4 weeks 17 hours ago #56210 by Knifedealer
Welcome to this forum and thank you for sharing your situation with us. The best I can do is echo JIMG4 in saying I sincerely wish the best for you.

Your post prompted me to do some reading about fibroids and the different approaches used for their removal (myomectomy). My understanding is that while many of the symptoms can be uncomfortable if not disabling, uterine fibroid tumors are rarely cancerous. One study I read (I'm unsure when it was published) noted that compared to an abdominal myomectomy, a laparoscopic myomectomy has fewer complications, a shortened hospital stay, and less disability, but it is a difficult and tedious operation, requiring advanced skills.

It's puzzling that the bladder pain started less than a week after your 10/4/18 laparoscopy. A quote from a website (link below) notes that while fibroid(s) are present, "the bladder has been “leaning” on the uterus and fibroids for a long time and has been “pushed” into a smaller space than it would ordinarily use. When the uterus and fibroids are removed the bladder will expand into that space. When you urinate, you can expect to feel your bladder contracting to empty. This will be a new and very strange sensation. Many women feel as if they have a bladder infection; it is not an infection. It is just the new feeling of the bladder contracting during urination." While I found this of interest, it would not account for the abnormal blood cells found in your urine.

Hopefully the bladder pain will resolve soon, your urine will return to normal and your cystoscopy will be nothing but positive. Please keep us posted. I'm sending you positive vibes.

http://womens-health-center.org/gynecology/fibroids/myomectomy/
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1 month 2 days ago #56169 by JIMG4
Chels

I just logged in and saw your post! So sorry to see that no one has responded to your worries even with just a simple acknowledgement of thoughts of prayers.

I'll apologize right up front for not having the right words for you personally, but I did read your words and certainly can empathize with your concerns. The constant wondering can wear down even the strongest of folks.

I wish I could aleve your worries. I'll be thinking of you as you enter for that first round cystoscopy and that hopefully nothing is seriously wrong and that you figure out what is causing all this pain.

Please update so I know how things went!

J

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC
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1 month 6 days ago #56141 by Chels8152
Hi,
I am new here and apologized if I don’t use the correct terms. I am 29 and was diagnosed with low grade bladder cancer in August. I had my TURBT on 8/9/18. I also had a laparoscopy done 10/4/19 due to lower abdominal pain. The laparoscopy found a large fibroid and that was removed. There were two smaller ones but my doctor left those, thinking they wouldn’t be an issue. I have been having bladder pain since 10/10/18. It’s almost an every day thing. I have had three urine samples since my laparoscopy and all show blood and white blood cells. I am feeling a bit anxious to find out what my first three month cystoscopy shows next week.

I don’t know if I actually had a question with this, it was more venting. Thanks for listening!

Female 29 with low grade
First cystoscopy 7/27/19
TURBt 8/9/18
Diagnosed 8/11/18

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