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Unusual Side Effect of BCG Treatment?

1 year 10 months ago #55563 by Chloecat
Thank you for your reply. It helped tremendously. I see my urologist next week and will let her know what you said and the link you provided. Thank you again.

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1 year 10 months ago #55562 by sara.anne
I moved your post here where most BCG information is. ("HOW TO" is more how to use the Forum.)

While relatively rare, arthritis IS a known side effect of BCG

You need to be sure that the uro and the rheumatologist are aware of this!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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1 year 10 months ago #55561 by Chloecat
I received my 6th and final BCG treatment on June 6. Within 48 hours, I was in incredible pain in certain joints. I couldn't move my head, neck was so stiff and painful. Left knee swelled up and I wasn't able to walk without being in incredible pain. Arthritis in my left hand flared up so bad I can't grip anything and I'm left handed. I've never experienced pain like this. This continued for weeks. All the tests doctors ran for joint inflammation came back normal or negative. My urologist said she had never heard of a side effect like this. Right now, the incredible pain has subsided, but I still can't grip anything with my left hand, my left knee is swollen, but I can limp around and my neck is still very stiff and I still can't move my head, but I'm managing. I'm starting PT for the neck this week. And have an appointment with a Arthritis and Rheumatism doctor later this month. Not sure if these will help, but I have to do something. This has to be related to the BCG treatments. Has anyone ever experienced this?

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