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First Cystscopy with Dr Wilson

7 months 1 week ago #55227 by Jack R
Exsequor,

Congrats on a good check up and the 6 month graduation.

Sounds like you have now discovered the difference between a "Rigid" and a "Flexible" Cystoscope. Armed with that knowledge, before each future appointment, you can request a flexible for the exam.

Perhaps it should be a crime to use a rigid for any exam where we are not under anesthesia. While a rigid can cost about one-third the price of a flexible, customer satisfaction has to count for something.

May your next checkup be even better.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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7 months 1 week ago #55220 by exsequor
First cystscopy with Dr Wilson (2nd exploratory after "original" tumor removed).

WENT FAR BETTER THEN I COULD'VE EVER IMAGINED! Her soft "old" (as she says) Olympus scope was 10-20 times less painful and more pleasant then the modern (as she says "more rigid") modern scopes that ARE the ONLY scope available in my city of Colorado Springs, that I am aware of.

Her practice received the new scopes, but since she does around 16 cyto's a day, and has a fulltime helper through the ENTIRE cytsoscopy, she decided to not use the new, more rigid scopes, and use her favorite which is a 10-12 year old, black, ultra soft, Olypmpus scope. It was the first time I was scoped for more then 5 minutes, and also the first time I was laughing and it was absolutely pain free (except for a 2/10 for pain for passing the prostrate for a brief moment ; I compare that with a 7-8/10 for passing the prostate with the more rigid scope).

Anyways she went through and didn't find anything.


Then at the very end she finds a single .25mm or less tumor, that was VERY small and early on. She said removing it was optional. Then she gave me the choice of her removing it with her electo-shock machine right then and there while I was awake/ "I thought you had to be asleep, is that even possible?" I replied. She replied yes.

So we proceeded. She asked me if she could blast it a second time, making sure it was gone but also making sure the first blast wasn't too painful. When I informed her the first blast was barely a 1/10 on pain scale, she did second blast. Then she told me she put a small amount of mytocin in my bladder, told me what it was. At this time I thought I was in for pain when she removed it since it's always been painful upon removing the scopes with my other urologist/his scope. NOPE. She had had it removed for 2 minutes already at that point, and it was so pain free I didn't even know.


Next explorative (check-up) cystscopy is scheduled for Oct 26 2018. So I finally graduated from 3months to 6 months, right now. So we will see! All glory be to God.

Also got second opinion back on my original pathology from John Hopkins University. They agreed that it was low grade, non muscle invading, urothelial carcinoma.


Still get some flank pain around kidneys here and then, but I have found that breathing, well ness, lack of stress, and my anxiety medication seems to fix the pain. Am recommended to do another full body CT in a year or so. My last full body US after I complained for persistent flank pain after the procedures, showed "perfect" results.

Overall I am thanking God, this community, my fiance and family, and my wonderful doctors, along with all the great benefits I've received from 77% CBD oil, apricot seeds, alkaline water, selenium, and kelp sourced iodine.

Much love to each and every one of you, and I continue to pray and fill my spirit with the thoughts that I and each and every one of us (Lord willing) will continue to make strides of progress towards this nasty disease, and maintain our inner health and balance as we proceed day by day, month by month and year by year.

In closing, I still hold in small part of logic, that this is still remission and things can always change for better and for worse. But I am beyond cautiously optimistic, but one still must be cautiously optimistic to one degree, and I feel in my soul, heart and spirit that things will continue to move for the greater good, especially as I follow closely to the knowledge and advice I've learned here and from my great urologists. Again, I have love for each and every one of you going through this in whatever way shape or form.

Heavy Wine Hematuria: 7/28/2017
Original DX: LG/NMIBC 1.7x1.5x2cm
1st TURB on 9/12/17
1st Pathology Results on 9/25/17
1st Scope Recheck on 1/12/18
2nd TURB on 1/23/18
2nd Pathology on February 2/13/18 (TBD)

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