So sorry to hear about your experience. BCG is wonderful for those who really need it and who can tolerate it. But for those few who cannot, it is not fun. I suspect that your immune system and especially that in your bladder lining "over-reacted" and went into a fight mode! It may take a while for your bladder lining, which probably got really irritated, to recover.
Glad that you are seeing your urologist. He can prescribe some medications for the painful urination that are pretty harmless....except for dyeing your urine bright orange or blue.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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