Thanks for your post.
I am trying to get my doctors at the hospital of first choice to advocate with my insurance company to cover the cost of getting both Mitomyicin and BCG, on the logical ground of pay now versus pay a lot more in the eminent future if I have to have a cysectomy. I am hoping it will work. My hospital of second choice, Memorial Sloan Kettering (only because of hassles to get there), I am told has both drugs. So I will do that as a back up plan. I feel lucky to have access to many hospitals in the new york metropolitan area.
All of this "case management" is positively exhausting!
Barbara
DX 7/2013
18 tumors removed as of 12_11_14
18 rounds of drug treatments (M-C / BCG ) as of 12_11-14
Barbara Milton
Dx 7/23/12 After months of blood in urine
8/6/12 TURBT removed 7 Papillary Tumors, all low grade
As of 12-11-14 18 Tumors removed (1 high grade, non muscle invading), 3 TURBT surgeries, Many fulgarations in office.
As of 12-11-14 6 instillations of Mitomyicin C, 12 installations of BCG.