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"All Clear" best words I heard!

5 years 3 months ago #46683 by Nicke
Thanks Sara Anne,
That´s what I also have been told. There was more of a redness and not a rash in my bladder, so I have to rely on the Uro, who took it for an irritation from the Mitomycin.

I might have a discussion with him in a few weeks when he has the result from the cytology test.

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb

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5 years 3 months ago #46682 by sara.anne
Niklas, you asked a good question. CIS has been described to me as looking pretty much like a rash on the surface of the bladder. When I had BCG it caused an irritative reaction in the bladder. We had to have it biopsied because, while my uro was "sure" it was just irritation, it could have been CIS again (it wasn't.)
So you see it is not a tumor in the usual sense.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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5 years 3 months ago #46673 by Nicke
Thanks Nancy and Sara Anne for, as always, for good and supporting answers. And apologises to Nancy for stealing your thread.

Sara Anne, you confirm what I suspected. One thing I haven't got yet: How DOES CIS look like? Is there a typical photo anyone can give a link to?

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb

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5 years 3 months ago #46670 by CatherineH
Congrats, Nancy! Love seeing those "all clear" numbers get bigger each year!

Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
The following user(s) said Thank You: Nix

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5 years 3 months ago #46667 by sara.anne
Yes, things such as mitomycin and BCG can and do cause irritation. While you can't ever be POSITIVE that it is not CIS, the odds are very good that it is not.
The cytology tests are notorious for both false positives and false negatives, which is why we still get cystoscopies..

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 years 3 months ago #46664 by Nix
Nicke,

I was watching for your post, and happy that is behind you. As for your concern of the "red area", I know how worry stays in the back of our minds.
Any time I am not sure or confident in my Uro (previous Uro) I always went for a second opinion.
My bladder was red after my 23 BCG's, but my Uro did do biopsies to verify that it was inflammation and not a return of my CIS.
Did you voice your concern to your doctor? If you have any concern I would certainly go to a Uro with bladder cancer expertise, and get a second opinion.
It always put my worry to rest.

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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