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Moving over here! :)

6 years 1 month ago #43500 by AASTEAPOTS
Mike, my Uro said he thinks it is because of my age. Because I am young my bladder had a lot more inflamation than it would if I was 20 years older. He explained that If I were 60+ and broke my arm it would take weeks longer to heal than if I broke my arm at 40. He also said it is because my bladder muscle is still very toned unlike a bladder in an 80 year old. He has had 2 other patients my appox. age and they also suffered a very long recovery. For what I have been reading it is not so uncommon.

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6 years 1 month ago #43490 by mmc
It really should not be hurting so much. What does you urologist say about it?
Maybe there is something that can be done (surgical procedure or something) so this is not an ongoing major issue.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 1 month ago #43489 by AASTEAPOTS
I am not scared of the treatment itself. I am scared of the pain the catheter is going to cause. I am still in severe pain when I pee and I am taking 800mg Ibuprofen every 5 hours and I am taking hyophen 3xs a day. I still have to grab onto the sink to keep from jumping up off the toilet when I pee. I cant imagine them sticking in that tube and it not hurting like HELL! As far as feeling yucky I have made up my mind that I am going to be sick as a dog so if that doesn't happen then I will be relieved :P if it does then I am mentally prepared.

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6 years 1 month ago #43487 by Flamenco.
ditto Nancy·s comments - my first BCG washes were a breeze, no great discomfort with the instillation, although quite a bit after a couple of hours and for about 48 hours afterwards, but definitely not a treatment to be scared of going through.
Diane

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6 years 1 month ago #43486 by DougG
Amy,

I am concerned that you are still in pain when you void. What is your uro saying about that? Hope your BCG treatments go fine and BCG does its job. It has worked for Doug.

Anita

Anita
Forum Moderator
Caregiver

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6 years 1 month ago #43485 by Nix
Hi Amy,
I think everyone is nervous about BCG washes the first time. It really isn't any thing to be afraid of, in fact, I used to try to visualize my bladder fighting off the cancer. After all my treatments......it did :laugh:
Good luck, and I just know that soon you will be passing on the same comments/advice everyone is giving you!

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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