Mike, my Uro said he thinks it is because of my age. Because I am young my bladder had a lot more inflamation than it would if I was 20 years older. He explained that If I were 60+ and broke my arm it would take weeks longer to heal than if I broke my arm at 40. He also said it is because my bladder muscle is still very toned unlike a bladder in an 80 year old. He has had 2 other patients my appox. age and they also suffered a very long recovery. For what I have been reading it is not so uncommon.
I am not scared of the treatment itself. I am scared of the pain the catheter is going to cause. I am still in severe pain when I pee and I am taking 800mg Ibuprofen every 5 hours and I am taking hyophen 3xs a day. I still have to grab onto the sink to keep from jumping up off the toilet when I pee. I cant imagine them sticking in that tube and it not hurting like HELL! As far as feeling yucky I have made up my mind that I am going to be sick as a dog so if that doesn't happen then I will be relieved if it does then I am mentally prepared.
ditto Nancy·s comments - my first BCG washes were a breeze, no great discomfort with the instillation, although quite a bit after a couple of hours and for about 48 hours afterwards, but definitely not a treatment to be scared of going through.
I think everyone is nervous about BCG washes the first time. It really isn't any thing to be afraid of, in fact, I used to try to visualize my bladder fighting off the cancer. After all my treatments......it did
Good luck, and I just know that soon you will be passing on the same comments/advice everyone is giving you!