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denial..BCG therapy

6 years 3 months ago #42970 by motomike
The devil is hiding behind denial waiting for the cancer cells to move to other parts of your body and kill you faster. Denial is evil. Denial is dangerous. Denial is a killer. Denial is stupid. You will find no one here signing about wonderful DENIAL.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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6 years 3 months ago #42954 by sara.anne
I would be a little careful about the recommendation of depending only on those little tablet that go in the toilet tank. My uro's instructions, and that of the material that came with the BCG itself, says "1 cup of bleach." Bleach is dirt cheap, especially if you buy the generic kind (it is all the same anyway). No sense in being careless for no reason.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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6 years 3 months ago #42953 by upnorth
<strong>Alan wrote:</strong>

I found that putting release tablets in the water basin (tank) were an easy solution. That way with each flush there was an active cleanser and didn't have to pour after every trip!. As the other ladies have indicated, it is good to be safe but, as my URO answered my concerns several years ago "If it were extremely dangerous he wouldn't let his staff handle it". Be careful and cautious but, you'll be fine!


Thanks for the good idea, and advise.

Please consider getting the BCG, it can, and has been handled by many others with no problems. You can't run from this disease, you have to fight it or it will surely win.

You have to show your children, and grand-children how even cancer can be controlled, if you keep fighting.

Mark

Age 51
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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6 years 3 months ago #42952 by mmc
First, you NEED the BCG treatment.
Second, it is NOT a choice between your life and your grandchildren's lives, or your husband's life or anybody else.
Third, ask your doctor some of these questions.
Where in the world did you come up with spreading TB through the air if you got BCG.
Fourth, Tarot cards are just make believe.

I can't believe you are considering throwing your life away based on such crazy misinformation.

The fact that you skipped it this long isn't good but the fact you are least trying to find out facts now is a positive sign.

Do you think more than one in ten trillion people would ever do BCG if it was going to kill their loved ones???????

Don't let your denial prevent you from finding out the facts. That CAN kill you.
Don't let your grandchildren drink from the toilet on the day of your BCG before or after putting the bleach in it. Then they will be fine.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 3 months ago #42948 by GKLINE
Holy Cow!

And My answer is!

GET THE BCG Treatment! Save Your Life!

Be there for your Grandchildren for a long time!


George!

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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6 years 3 months ago - 6 years 3 months ago #42946 by Alan
I found that putting release tablets in the water basin (tank) were an easy solution. That way with each flush there was an active cleanser and didn't have to pour after every trip!. As the other ladies have indicated, it is good to be safe but, as my URO answered my concerns several years ago "If it were extremely dangerous he wouldn't let his staff handle it". Be careful and cautious but, you'll be fine!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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