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Gemcitabine Treatments

7 years 2 months ago #42854 by sara.anne
Sorry, Kim. We cannot allow posting of individual email addresses on the Forum. Doing so would allow anyone access to your private address; we have had spammers and people trying to sell products and worse use this information. Therefore, to protect you and ourselves we had to decide not to allow it.

Sorry

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 2 months ago #42851 by Kim E
Hello,

So you had your Gemcitabine just in your bladder? And not systemic?

What grade is your TCC? Let me know if you want to chat through email. I am VERY interested to hear about your experience!

Thank you!

Kim

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7 years 2 months ago #42850 by MyChoice
I had 3 cycles (12 weeks - one treatment a week) of GEM this past March 2012 - May 2012. In my case the first week I had the worst side effects. Some feelings of nausea for a couple days, tingling finger tips, food tasted different, fatigue, sleep pattern was off. Then I think I just started getting use to the feelings and what to expect so it wasn't so terrible as time went on other than I got really tired of going every week. I worked everyday except about 6 days total. Some days around 1:00 I just felt like I hit a wall and needed to rest. My doctor said I tolorated chemo very well so maybe others can tell you more about the dark side. I drove myself 2 hours each way every week except for 2 chemo treatment visits. I'm 54 and in moderate shape (or was). Good luck!

PC 7/2/12
T3a/N2/M0

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7 years 3 months ago #42766 by Kim E
My doctor has not used it on many patients. It has only been used for about a year now for bladder cancer... so him saying no one has had reoccurance of tumors is NOT that big a deal... when you put it in perspective.

Gemcitabine is the drug.

Thanks!

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7 years 3 months ago #42761 by upnorth
Welcome Kim.

Sorry you have to be here, and that the BCG did not help. That is quite a bold statement by your doctor. I was wondering if they gave you the name of the drug?

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 3 months ago #42758 by Kim E
I have been fighting TCC in my bladder for 3-1/2 years. I've had 3 or 4 (lost track) round of BCG with no success. I just went through 6 intravascular treatments (one per week). My doctor says this is a new drug used for reoccurring TCC and every patient who has used it has not had any tumors return. Anyone out there have these treatments? Any side effects? Have you had any reoccurring tumors?

thanks

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