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7 years 8 months ago #41435 by warrentug
My doctor had to push the start of my BCG treatment back two days last week because he was having trouble getting the medicine. The drug companies make a ton of money on this stuff, I don't understand why they don't make enough of it. Warren.

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7 years 8 months ago #41434 by maryland_mike
Here's data on mmc availability: http://www.ashp.org/drugshortages/current/bulletin.aspx?id=433. There is nothing there regarding BCG; however, the doctor telling me of the shortage is Director of Urological Oncology (and my surgeon) at a very large highly-ranked regional hospital.

TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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7 years 8 months ago - 7 years 8 months ago #41433 by mmc
maryland_mike said that's what his doc told him and that's what Mark repeated.

That is, both Mitomycin and BCG were experiencing shortages.

I know the mmc (mitomycin) has been having shortages on a regular basis for the past five years or so (at least). Haven't heard that about BCG shortages before though.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 8 months ago #41430 by upnorth
Thanks for the clarification Sara Anne. :)

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 8 months ago #41428 by sara.anne
No, Mark....it is Mitomycin where there is the shortage!
This has been going on for quite a while. Maybe someone knows why?

SA

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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7 years 8 months ago #41427 by upnorth
Mike, It's good to hear that everything has gone well! :cheer:

I did not know of the shortage of BCG.I hope they fix that situation soon, their are two many people that are depending on that treatment.

I'm sure your doctor has done everything possible to make sure you are cancer free. For him to tell you about not being able to use Mitomycin C shows that he is straight forward and honest with you. That's the kind of relationship I want with my medical team.

Keep sending us the good news!

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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