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Is this a BCG side effect?

8 years 10 months ago #29924 by mmc
Chuck,

If you have had multiple recurrences of high grade, it is NOT too early to get that 2nd opinion from a uro at a major bladder cancer center.

You may want to consider getting that follow up TURB at the bladder cancer center (bcc).

Doesn't mean you have to change where you get your BCG treatments if the bcc doc agrees with the treatment plan.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 10 months ago #29898 by cljjlk
Thanks everyone for the advise. I'm a little premature on getting that 2nd opinion, but I wanted to be ready (if necessary) to make the request. I had my final BCG teatment this week. I think we are waiting either 6 or 9 weeks and then do another TURBT. Side effects were no worse this time than the first series. Hopefully the BCG worked this time. If not it will be the third reoccurence in six months. The last two were high grade (TaG3). I'm very much trying to keep a positive attitude, but you warriors know the helpless feeling while you wait. Again, thanks for your advice and suport.
Chuck :unsure:

dx - Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10

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8 years 10 months ago #29876 by Patricia
a top uro/surgeon well respected in the field of urology is
Dr. Mark Soloway in Miami..
http://urology.med.miami.edu/x14.xml?id=35277
Pat

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8 years 10 months ago #29865 by Nix
I am sure JH is the place to go, but if you want a second opinion near home, I go to Moffitt. Right now my Uro is Dr Wade Sexton. I do like him, but I have gone to several doctors for second opinions during my journey through BC.

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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8 years 10 months ago #29863 by Cynthia
Joey got in there before I did, so ditto.

contact information.

http://urology.jhu.edu/markschoenberg/index.php

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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8 years 10 months ago #29861 by Joey
I am being followed at Johns Hopkins by Dr. Schoenberg who I like alot. JHU was the #1 Urology hospital last year. He is the head of Urology/Oncology. He also does a lot or research in the lab besides cystoscopy and RC's.

Joey

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