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Post RC Updates continued

9 years 9 months ago #29371 by Humpy
Right back at you Rudy. Merry Christmas to all.

You are right Rudy, I could not have done it without the support from my wife, and family. They make life worth living!

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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9 years 9 months ago #29370 by rudyskier
Thanks KC... I kind of figured there was some learning curve since the first week I did not have much of a stream, I should just call it a trickle. Now, at least on occassion I can actually call it a stream.

Mike, you should give it a try and let us know what happens. I'll bet it will work out. And if so it will be an improvement in your Neo-life style.

Thanks and wishing everyone and all your respective families a Merry Christmas and a happy and HEALTHY NEW YEAR.

In particular I want to give thanks to my wife and kids for their encouragement and support through all this... It was certainly easier knowing they were there for me.

I am certain that each and every one of you has a similar story of wife, kids and loved ones that helped you through it all.

Rudy

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9 years 9 months ago #29368 by mmc
Good discussion thread Rudy. I'm learning a lot too.

Thanks for the info KC. I'm going to start trying to go without the catheter and just cath intermittently. I used to go better than I do now so I think doing it the easy way (catheter) has caused me to lose some muscle memory.

I also can tell when I have to go, but not when sleeping.


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 9 months ago #29366 by kcnorthstar
Rudy,

Your post just made me remeber that I peed sitting down for about the first 3 weeks or so after my surgery. At first that was the only way I could void completely. Eventually, I experimented with peeing standing up and evetually figured out how to empty completely. Its really a case of just having to relearn how to control your bladder.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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9 years 9 months ago #29365 by rudyskier
KC: thanks for the tip. I am not yet at the point where I plan to stand and pee. I'm still seated, but am able to get a better stream than I did a week ago. I suspect it will improve somewhat but never be what it once was. That said, when I had a prostate it wasn't much of a stream anyway and usually never steady. So now that the old male curse of the prostate is gone I am actually optomistic that things will work just fine.

Rudy

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9 years 9 months ago #29364 by kcnorthstar
Rudy,
I will try to answer you question to the best of my experience. I remember that no one seemed to be able to explain to me how to void completeley. I asked the doctor and people on this forum. I just seemed to have trouble keeping a steady stream going and never seemed to empty completely. I finally figured out the right muscles to compress and also realized that the days of peeing with a steady stream were gone. after some experimenting, I learned how to flex the right muscles and that it took flexing those muscles over and over a few times to completely empty. I think you are on the right track when you talk about sucking your gut in like it was when you were 20. I also was givin a tip by a person on this forum that may sound strange, but it worked for me. Grab one cheek of your butt and pull up hard as you void. try one side and then the other. As strange as is sounds pulling up on my the right cheek of my butt makes it eisier to void completely. It seems to make the muscle contractions more effective. I still do this to this day although I get some strange looks from guys in line at the public urinals.

KC

Age 59
DX Jan 2006 - T1B G3
RC - Neobladder June 2006

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