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Leaving town, finally!

9 years 1 month ago - 9 years 1 month ago #28261 by calypso

"You can't smooth out the surf, but you can learn to ride the waves."

- Author unknown [/b]

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9 years 1 month ago #28251 by mmc
It is probably important to note though that BCG treatment CAN cause false positives for the TB test.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 1 month ago #28250 by mmc
Bill,

Are you starting to understand why we kept telling you to get another opinion from a doctor out of town?

Hope you are able to get some good answers. Make a list and take notes.

Best of luck!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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9 years 1 month ago #28245 by Bill Jr
rudyskier wrote:

Bill: I was totally or I thought recouperated from all those symptoms I mentioned during the BCG treatments and went for my regular PSA blood test and it was elevated so I then went in for a Prostate Biopsy in which several samples were taken. All came back negative for cancer. A week or two after the Biopsys were done, the URO doc called and said to go and get a TB test. this is a simple scratch test on the arm. I did and low and behold it came back positive. As you can imagine my reaction was What the $%@$^%@$...

Then I had to see an Infectious Disease guy who put me on Isoniazid and Rifampin for 6 months. Through-out it all I had no symptoms of any thing being wrong either before, during or after the medication. Although the medications left me with a lousy taste and dry mouth as well as upset stomach unless I ate at least a little something before taking the medicine. I was told that the BCG infection manifested itself in the prostate. Go figure...

Rudy


Thanks for the reply! Whatttttttttttttt! My Uro has told me not to get a PSA as the BC will give a "false-high" reading and while taking BCG a TB-test would give me a "false" reading. However, I have thought since the 1st infection, that it was a TB-infection of the prostate! He said there was NO test to confirm, so he just put me on a std-antibiotic. I am on the same antibiotic for this 2nd infection & I am getting worse. I know I have a "railroad" spike deep in my butt. Pain during urination is horrible, and I do not have enough energy to die:woohoo:

Hopefully, the new Uro on the 30th at UVA will get me on the right path. I have made the decision, that I will have NO more BCG here in town, but will continue the Cysto's.

Thanks folks. Bill

62
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)

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9 years 1 month ago #28240 by Melodie
YES!!!!! I am delighted. :) :) :) Thank you, Bill, for this wonderful news...that you are getting another opinion and seeing someone with more experience. Since you got the appt. that quickly, I would say the good Lord is wanting you to see this particular doctor and I'll be anxious to hear what he tells you. I think I have seen his name somewhere before but I don't recall when and haven't seen a bio on him. I've been keeping you in my prayers all along and will continue. Please update us when you can. Hugs,

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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9 years 1 month ago #28230 by rudyskier
Bill: I was totally or I thought recouperated from all those symptoms I mentioned during the BCG treatments and went for my regular PSA blood test and it was elevated so I then went in for a Prostate Biopsy in which several samples were taken. All came back negative for cancer. A week or two after the Biopsys were done, the URO doc called and said to go and get a TB test. this is a simple scratch test on the arm. I did and low and behold it came back positive. As you can imagine my reaction was What the $%@$^%@$...

Then I had to see an Infectious Disease guy who put me on Isoniazid and Rifampin for 6 months. Through-out it all I had no symptoms of any thing being wrong either before, during or after the medication. Although the medications left me with a lousy taste and dry mouth as well as upset stomach unless I ate at least a little something before taking the medicine. I was told that the BCG infection manifested itself in the prostate. Go figure...

Rudy

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