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9 years 4 months ago - 9 years 4 months ago #27113 by Moonerj
Hi Suzy

Great you will find out if your tumors in the past have been CIS.
Your Uro I am sure will give you a copy of your path reports.
Sorry you have been getting conflicting advice.
All the best,

Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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9 years 4 months ago #27112 by suzy wong
thanks jack had lots of conflicting advise sending me crazy
lol i am also confused regarding CIS but i shall find out monday morning x

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9 years 4 months ago #27111 by Moonerj
Hi Suzy

Your question is hard to answer until you get the path report from your latest tumor. If it is still TA low grade you should be fine.

Just ensure you continue to check-ups(Cystos every 3 months)

You seem to trust your Uro which is good. Have you ever thought of getting a 2nd opinion, due to the tumor recurrences and both BCG and MMC failing.

I wish you all the best,:)
Jack

PS: I thought you had CIS tumors in the past or am I confused on that?

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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9 years 4 months ago #27095 by suzy wong
here is my treatment so far
NEPHROURECTOMY 2008 FEB
JULY CYTO SHOWED TUMORS ON BLADDER TAG2
BCG FOR 6 WEEKS
THEN BCG FOR 3 WEEKS AFTER NEXT CYTO
MY 2ND BCG COURSE FAILED so i was given 6 WEEKS MYTOMYCIN
1 TINY TUMOR SCRAPED OFF STILL TA G2
NO TREATMENT GIVEN TILL NEXT CYTO WHICH WAS YESTERDAY URO SAID BLADDER LOOKING GOOD SEEMS UNDER CONTROL ONCE AGAIN A 2MM TUMOR WAS SCRAPED OFF NO TREATMENT NEEDED
HAVING CT SCAN IN A FEW WEEKS TIME AND ANOTHER CYTO IN 12 WEEKS
i am back in uk and we seem to operate different over here does this send alarm bells ringing were you come from
i feel my uro is taking really good care of me!!!!!!!!!!!

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