I haven't been on this site for ages, and I'm really impressed with how it's all developed.I was a member, and had loads of fantastic support from everyone<
Hey Ann! Welcome back, and thank you for bringing us up to date with your good news, I'm very happy for you...!
You are referring to the email group from 2000, right? Because this forum is from '05. The ACOR email group is still going as well, and I think you'll find many more familiar names there than here, as the populations of the two 'communities' hardly overlap at all, just a few people are active on both.
You're experience and attitude are a great adddition to the population here, I hope you decide to stay active! Most TaG1-ers don't hang out in places like this! Like my sister for example. She is still clear, it's been about 8 yrs now, no more recurs...
I'm doing pretty ok myself, can't complain (although I do!).
I have been doing lots of things, diet and drink-wise, and I can't tell you if they have helped or not, but in the present circumstances, I'm going to keep doing them, as I don't know what it is that's presently preventing re-occurences.
I mainly drink water, either filtered from the tap (good water from gorgeous countryside in North Wales) or fresh bottled- I won't drink any bottled water that's been in the sun, or tastes of plastic, won't re-use plastic bottles, or leave my water in a plastic bottle in a hot car.
Apart from water, I drink green tea. Gave up coffee some time ago, not because of BC, but just because. I also drink more wine than I probably should, but there has to be pleasure in life!
As to the amount- I probably drink between 6- 8 largish glasses of water a day and 2/3 green tea. Lack of water concentrates urine, and probably makes it more of an irritant to the bladder. I think if you research the internet, there's a recommended daily amount for people normally, but I think I have more than that. I also think that the large majority of us are dehydrated, whether we recognise it or not, and that everyone would feel better if they drank more water (but not drink TOO much at once, as it can make you very ill!)
Hi Anne......hey great news....i'm so glad you came back to update us. There are so many people that never give us the follow-up news and one can only hope its good news....so congrats. I can't believe i'm now at the 5 yr anniversary of my cystectomy on the 23rd.....should i have a cake or something? Pat
I haven't been on this site for ages, and I'm really impressed with how it's all developed.I was a member, and had loads of fantastic support from everyone- in fact I don't know how I would have managed without it, particularly as I wasn't coping and was put on Auntie Depressants This was in 2001. I can see some familiar names- Pat, Roni and, of course Wendy, amongst others.
I just wanted to say hello and having been for a cysto today, let you know the great news of how I'm getting on, and to tell others how it can be.
A short potted history. Aged 55, from Chester UK, diagnosed 2000 with superficial non-invasive bladder TCC, Ta Grade 1 after a year of to-ing & fro-ing to the doctor, and being told it was my age, dryness causing urinary tract infections. TURBT with 7 more of the blighters on following check up. Intravesical Mitomycin. Numerous TURBT and a further course of Mito- treatmentover about 5 years in total. Then moved to 6 month instead of 3 month cystos. Then moved to 12 month cystos. Now have been 2 1/2 years clear- and another clear cysto today. Whoopeedoo!
Mustn't get complacent, but due to this site giving me valuable info and GREAT support, my urologist, a good diet and plenty of water, feel I could cope with it much better if/when it comes back!