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Hope Please?

13 years 1 week ago #5498 by Patricia
No i understand that Joe....he was probably like a lot of our people on this site who have ignored symptoms or were told they meant nothing.....thankfully some advocate directed him to the right place. I have an old friend of mine whose son was diagnosed at age l6 and it had spread to his brain, lungs, and virtually everywhere else and this was in the early trials at Indiana Med Center.....fortunately his father had heard of their research and got him over there and his cancer was totally wiped out everywhere. Its a great story...and to think there might still be doctors out there that are ignorant of the cure is amazing to me. My son ignored his symptoms too...who knows what he was thinking but at age 30 you're definately not thinking cancer. Strangely enough it mothers intuition or the angels guiding me...i had this horrific dream where he died..and i woke up in tears just sobbing...i couldn't imagine why i would dream such a horrible thing...For some reason i called his wife and asked if he was feeling alright and she told me he was having some problems but that men his age sometimes have those problems....!! I convinced him to placate me and please go see my family internist. He diagnosed him immediately. I hit the internet...his wife hit the internet and we both came up with Indiana Med Center.....thank God. I just wanted people to know that this disease can be curable at almost any stage now..unless you don't seek help. Pat

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13 years 1 week ago #5497 by Mike
Pat I'm sure they are researching BC everyday and with every bladder that is removed learning more and more but I am happy at least it is treatable these days then not.

As far as Lance his odds got very slim as he ignored his early symptoms thinking it was from cycling. Now wipe out the %10 I saw it somewhere does not matter now. I watched an hour long interview with Ted Koppel and Lance called Living with Caner. Lance's cancer spread to his brain and lungs I would not call them very good odds. Sure if caught early it is %100 curable but that was not Lances case. Lance himself during the interview did not know if he was going to make it or not as he told Koppel. He personally said every sign he had he had an answer for everything thinking it was all sport related and it damn near killed him. Such the yellow braclets LIVESTRONG that he donates to help the American Cancer Society. He did not come up with this idea going thru testicular cancer with flying colors. All I was saying here Lances odds were not favorable at one time. Joe

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13 years 1 week ago #5495 by Patricia
Joe...whoever told Lance Armstrong he had a l0% chance of survival of testicular cancer was wrong. It is l00% curable...Indiana University came up with the cure..and it is a cure. He eventually went there. My son also had testicular is a young mans disease and he also went to Indiana and is cancer free 6 yrs out now. This protocal is pretty much used all over the country now. Now if we can just get them to work on bladder cancer a little more aggressively. Pat

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13 years 1 week ago #5491 by Mike
Emily think of Lance Armstrong he was told he had less then a %10 chance of survival and look at him now. He gives us all hope an amazing man. Regards, Joe

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13 years 1 week ago #5487 by lmh22553

My husband's bladder cancer was never cured, but he had a radical cystectomy in 1995; the cancer returned to his lung in 1997;
and he lived 9 more years after that -- and had many, many good days during those 9 years.

He had lots of chemo and a little bit of radiation.

We tried to focus on his quality of life and getting the best treatment recommended by his wonderful oncologist.

My husband survived much longer than all of the statistics for stage 4 bladder cancer.

It's very scary when you start reading statistics on the internet and trying to interpret data.

take care,


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13 years 1 month ago #4967 by Rosemary
Well, this isn't exactly a story, but I remembered reading something on Dr. Lamm's site that caught my attention once....maybe if you keep searching you will find the story that you are looking for....however, this comment tends to make one have some hope yet....

My mom has stage 4 bladder cancer, which has invaded the wall and lymph nodes and possibly other. She has had chemo and has helped reduce the lymph nodes from 3 cm to 1 cm or normal size. The bladder walls have thickened. The doc seems to be unsure of prognosis. They have scheduled the removal of the bladder for later this month. What is difference of stage 3 and stage 4 I read that stage 4 is not cureable. Is this true and if so how long might someone expect to live and what might be done to extend this.

Dear Friend,
Sorry to hear about your mom. It is good that she has responded to chemotherapy with regression of the disease in her lymph nodes. The general approach, as recommended by her doctors, is to go ahead and remove the bladder because of the increased risk of residual disease there. You can't say that stage 4 disease is always incurable, or that stage 1 disease is always curable. Obviously the chance of cure is highest with lower stage, lower volume, lower grade disease, but some patients are long term survivors even with widespread metastasis.

Your friend,

Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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